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Thread: June Chit Chat

  1. #21
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    Agate, if I remember correctly I believe Rita had a bad site reaction to Copaxone and got necrosis of the skin. The Nurse kept telling her to put hot water on the site and she did and it got worse and worse. I believe a friend of hers came on after that and said that Rita had done everything the nurse had told her to do and the nurse told her to keep giving the shots and I think she did that. I might be a little wrong on this, but it is kind of the way I remember it.
    Virginia

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  3. #22
    Distinguished Community Member Cherie's Avatar
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    Actually, I think I started Chit Chat and when I stepped off the Board for a while Peg started the monthly threads. I have no problem with it being renamed but there may be folks who might cross paths with us now and in the future who did not know Peg and might be more inclined to join Chit Chat than Pegs Chit Chat. Just a thought.

    I got in from Seattle this afternoon late and Dave and I went out to dinner on the way home from the airport to celebrate our 44th anniversary. The Consortium was exhausting and there was so much to learn and process. Will try and post some of it when I am less tired in the coming days.

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  5. #23
    Distinguished Community Member Howie's Avatar
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    No, I'm not up this late, I'm up this early. Good morning all!

    Cherie, the voice of reason. You're right about the Chit Chat name change. It may make someone new feel unwelcome to join in. Perhaps having a gif named after her, like Grassman does. Like the gif she used of someone riding a horse. It's not a regular gif here, I looked. Anyway, just an idea.

    I'm going to do my running around this morning. Mostly, the bank and store, and mail off my bills. Then tomorrow, the dump, and CVS.

    Well, I'm working on my first mug of coffee. Everyone have a great day!
    Evolution spans the Universe.

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  7. #24
    Distinguished Community Member agate's Avatar
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    Howie, I think this is what you mean? It's viewable among the smilies if you're in Advanced mode. If you hover over it, it says "Grassman." (There's also the Medicinal Cannabis forum in his memory.)


    This sounds like a good idea to me though I don't recall the image of someone riding a horse. I'm sure there's an image that could be used somewhere on the Internet.

    One problem with memorializing anyone here is that if you memorialize one, what about everyone else? Where to draw the line? Which person's contributions here are regarded as worthy of memorializing if that person dies? I'd like to think that everyone is equally important here though of course those who seldom post are apt to slip through the cracks, as we've seen just now when trying to remember people who were here long ago.

    There would also be some feelings to the effect that we're being unfair if we start honoring people by featuring them in a special way on this board. Or that we've become something like a clique--a group of old-guard people who've been hanging around here for years, the sort of group newcomers hesitate to join.

    I'm of two minds about this. On the one hand, it's a lovely tribute. On the other hand, it creates a somewhat different atmosphere, and I'm not sure I'd like the impression it would make.

    My guess is that members of her family aren't going to be dropping by here to see such a tribute, but they are the ones who have been hit the hardest by her death. I hope that everyone who feels inclined will write a note of sympathy to the family and send a donation to the MS Foundation if you're able to do that.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  9. #25
    Distinguished Community Member Howie's Avatar
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    Well said Agate. I vote we just leave things like they have been.
    Evolution spans the Universe.

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  11. #26
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    Thanks Agate, I like your post and feel the way you do. We all already miss her and we all know that we do. I am sure we will be thinking of her a lot. I agree about the cards and notes and donations for those who can.
    Virginia

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  13. #27
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    Nuthatch, wish you would come on more often. Just stop by and say a little something. You can see that much of what we say doesn't amount to much, but we try to just keep up with what is going on in each others lives. I hope you are having more luck with the lymphedema. I know that it would be depressing, at least for me. Even just the edema that I have gets depressing as far as trying to keep it at bay. I always start to wonder if you are alright.
    Virginia

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  15. #28
    Distinguished Community Member agate's Avatar
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    Look for nuthatch to be back early in this week, I think.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  17. #29
    Distinguished Community Member nuthatch's Avatar
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    Just recovered enough to catch up reading here and post after, sending my daughter and Tula off for the long drive home this morning. Had 3 wonderful days with our lovely daughter and precious granddaughter. Tula has grown, is full of imagination, has quite a sense of humor and is packed full of energy. She's really blossomed since the last visit in January.

    Visits never are long enough but we did manage to get her pumpkin patch planted so that pumpkins will be ready for the next fall visit. We also flew a kite (a new experience for her), she went to farmer's market with Grandpa, we played hide and seek (not easy in a wheelchair!) and raced up and down our wide, long hallway numerous times! I don't think I got more than 4 to 5 hours of sleep a night, because I didn't want to miss a single moment!

    I'm still very shocked by our Peg's passing and it makes me realize how precious and short life is.
    Agate, would you please PM me an address so I can send a card.

    Virginia, I'm okay. The lymphedema is depressing but I've been dealing with it so long now, it just is what it is. At least it's not as out of control as it once was. I have pictures, it would horrify you!

    Speaking of pictures, last evening Tula asked if we could watch a kid video on my computer. They don't have a TV at home and her parents limit her TV viewing, so I asked her if she'd like to see some pictures I have on my computer of when she was younger. I got the picture program up and was zooming through my millions of unorganized photos trying to skip past the photos of the construction of our house, and the other pictures I didn't need to show her, when I remembered I had made a slide show put to the music of Crazy Love, so I put that on for her to see.

    The slide show starts with pictures of my daughter during her pregnancy, an ultra sound picture of Tula developing, then as a newborn through her first year of life with her mama and daddy . . . beautiful tender pictures. She was so touched, she broke into tears of love. It was so unexpected and oh so sweet. Her mama came and they watched it over and over while holding each other in a warm embrace, giggling and loving. It was a beautiful culmination to a visit that I'll always treasure!!

    Hope everyone is doing well and can focus on the good things in life, even when things are not what we wish them to be.
    Holding you all in my thoughts and prayers.

    Joan
    Last edited by nuthatch; 06-02-2019 at 11:47 PM.

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  19. #30
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Virginia View Post
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    Agate, if I remember correctly I believe Rita had a bad site reaction to Copaxone and got necrosis of the skin. The Nurse kept telling her to put hot water on the site and she did and it got worse and worse. I believe a friend of hers came on after that and said that Rita had done everything the nurse had told her to do and the nurse told her to keep giving the shots and I think she did that. I might be a little wrong on this, but it is kind of the way I remember it.
    I had a bad reaction to betaseron. A surgeon did something to drain it even though there was nothing in it to drain. So the surgeon’s efforts turned an ugly reaction gangrenous. That put me in the hospital for a week and led to me going on disability. End of career. It was tough to recover from gangrene/etc.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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