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Thread: Was last here 15 years ago.....

  1. #31
    Distinguished Community Member Jeanie Z's Avatar
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    Smile

    :) Mark glad to see you post. I am on LDN for 20 years now. I recently fell and am recuperating from a shattered fibula and surgery with a huge long pin, 5 screws and a plate. I live alone and manage well most of the time. Glad you are doing so well.


    Temps here in West Palm Beach were a feel like 102 yesterday and will be again today. Jeanie :)
    Last edited by Jeanie Z; 06-06-2019 at 07:30 AM. Reason: typo

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  3. #32
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    Howie, hope I didn't step in too quickly. I saw the time lapse from Mark's last post and was trying to get him before he vanished again. If we are lucky we will see him sooner this time, but who knows?
    Virginia

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  5. #33
    Distinguished Community Member Howie's Avatar
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    Thumbs up

    Not at all Virginia. I'm always watching TV when I'm online, so I'm gone depending on what's on. I'll be gone after 10 tonight. It's like Star Trek. For years, I watched it looking for one I actually hadn't seen. And now I have them all on DVD.
    Evolution spans the Universe.

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  7. #34
    Distinguished Community Member agate's Avatar
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    I have long believed that MS therapies are not more effective because MS is a constellation of symptoms lacking a common cause (this belief is not original to me). Different therapies work for different people … if something doesn’t work, try something else. And even if a therapy is effective, it may not undo damage that is already done. Unfortunately there is no magic bullet for everyone.
    Mark, I hope that more attention will be paid to this idea. In fact, it would have been a good idea to keep in mind in the last several decades, but instead there have been many bewildered people wondering why Avonex or Rebif or whatever didn't "work" and despairing when they turned out to be switching to first one MS therapy, then another--and still progressing by the usual yardsticks.

    I realize that the drug companies could hardly have come forward with statements like "Well, this is only very tentative, and 'MS' isn't a very good name for all of the symptoms without any identifiable cause that people have. It's fairly definitely a demyelinating disorder, but that's about all we know just now. Anyway, here's this drug for you to try. Who knows? It just might help."

    But underneath the presentation of these drugs to patients, that seems to have been the real situation.
    Last edited by agate; 06-07-2019 at 08:44 AM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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