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    Distinguished Community Member agate's Avatar
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    Default Standing frames?

    I was watching a video of an Progressive MS Alliance panel discussing progressive MS, and one of the experts suggested a "standing frame" for people with progressive MS disability. This speaker is British, and maybe she meant what we in the US would call a walker, but maybe she meant a standing frame. Is anyone familiar with this?

    If anyone is interested in the Progressive MS Alliance discussion, sponsored by the MS International Federation:

    The panel participants are:

    The panel was facilitated by Stuart Nixon. Diagnosed with MS at 18, Stuart serves as co-chair of the UK MS Society’s Scientific Research Strategy Committee and is a recognised global advocate for ensuring people affected by MS can get the support they need to have a good quality of life. Stuart was joined by three MS experts:
    • Professor Alan Thompson – Chair of the Progressive MS Alliance Scientific Steering Committee and Dean of the Faculty of Brain Sciences at University College London;
    • Professor Jenny Freeman – Professor of Physiotherapy and Rehabilitation at the University of Plymouth, United Kingdom;
    • Professor Giancarlo Comi – Co-chair of the Progressive MS Alliance Scientific Steering Committee and Chair of the Department of Clinical Neurophysiology and the Director of the Institute of Experimental Neurology at the Scientific Institute San Raffaele, Milan, Italy.
    For once, a panel discussion that did not spend a lot of time going into specifics about the MS drugs. The discussion is more of a pep talk--cheering on people with progressive MS to take sensible care of ourselves and asking for support for the Progressive MS Alliance.

    Maybe this is being presented just now (April 10-12, 2019) to cushion the blow that some may be feeling on learning that the latest MS drug (Mayzent/siponimod), which was touted as being the "first ever for SPMS," is really only for the type of SPMS that still involves relapses.
    Last edited by agate; 05-01-2019 at 12:17 PM.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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