Page 3 of 8 FirstFirst 12345678 LastLast
Results 21 to 30 of 74

Thread: Keep on Moving Thread: April 2019

  1. #21
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    7,355

    Thumbs up

    There you go, making me look bad again!
    Evolution spans the Universe.

  2. The following user says "thanks"


  3. #22
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    9,408
    Blog Entries
    41

    Default

    The world hasn't seen your step counts and so comparisons can't be made. But resting is good too.

    Go with the flow.

    Roll with the punches.

    Live in the moment.

    It's all good.

    At least nobody is being sucked into one of those black holes.

    https://blogs.scientificamerican.com...ns-of-physics/
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

  4. The following 3 users say "thanks"


  5. #23
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    7,355

    Cool

    Thanks Agate. Black holes are the most interesting subject in modern physics.
    Evolution spans the Universe.

  6. The following 4 users say "thanks"


  7. #24
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    5,712

    Default

    Agate, you are a wonder. Your step count just goes on and on, getting more and more regular in the higher range.
    Virginia

  8. The following 4 users say "thanks"


  9. #25
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    5,516

    Default

    All of you inspire me re keeping on keeping on.

    Day before Yesterday I swam 20.5 minutes, 603 yards. Yesterday was a day off swimming as I had my pre op all morning for the anesthesia Cystoscopy and Hydroextension (SP?)

    This inspired me:
    https://www.palmbeachpost.com/news/2...h-disabilities

    I emailed her today as we are fellow SPS warriors....
    Last edited by Sunshine; 04-13-2019 at 02:05 AM.

  10. The following 4 users say "thanks"


  11. #26
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    5,712

    Default

    Sunshine, what an amazing lady and you are too. I hope you get to know her.

    When is your next procedure to be done? Do you know?
    Virginia

  12. The following 4 users say "thanks"


  13. #27
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    5,516

    Default

    My procedure is in 3 weeks. He only does it on the day of the week I have infusions alternate weeks. And I didnt’ want an early afternoon time as my body starts to break down by around 2 PM. So, I waiting for the 7 am slot (5 am check in time—geesh). Hoped for an 8 or 9, but the bean counters insist on them stacking up the times, to favor income over patient needs. That is the state of medicine nowadays.

  14. The following 4 users say "thanks"


  15. #28
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    5,516

    Default

    Yesterday I swam 666yards in 20.5 minutes. It was my assigned day to take an Ativan to get a break from pain and spasticity.

    I took it 2 hours after the swim and it lasted all day until nearly bedtime. It was terrific. I went to Home Depot with DH and started a new windowsill hobby of succulents.

    And tackled other things I had wanted to do. ALl the while, no spasticity, no pain. ALmost normal. ALmost...could def surf small waves on this. Will try that sooooooon

  16. The following 4 users say "thanks"


  17. #29
    Distinguished Community Member SuzE-Q's Avatar
    Join Date
    Nov 2006
    Posts
    1,935

    Default

    Sometimes first appointment slot of the day is good so you don't have to worry about the doctor running late for it.

    Sunshine, I know Howie has mused about this question in the past relating to pain pills, but it just seems to me you and your doctor might benefit from a conversation about the benefits versus the risks of daily ativan use for you.

    Yes, you might develop a tolerance and physical dependence on it. But isn't that an acceptable consequence given the physiological improvements it gives you and the dramatic improvement in your functioning and quality of life?

    Cherie, I believe, was taking up to 4 mg/day. I don't know what the upper limits are for it, but that would mean there's a lot of room in dosage for you to be able to work up to over the years if you began taking it regularly and anticipating a tolerance developing. Of course, I've taken it for many, many years and have not upped it beyond just slightly over 1 mg/day years ago. So, it doesn't always happen a need to continuously increase your dosage.

    It just seems to me that the level of functional improvement it gives you might be worth it to take daily if it can give you such a significant daily boost in your capacity to live and enjoy your best life.
    Please Note that my posts may have been arbitrarily altered by a Moderator and may not reflect my original content.

    Per Mike Weins: "...the admin/mod team doesn't have to provide a forewarning/warning/mention about altering a members post. It doesn't matter if they fix a link, remove a link, fix a typo, or whatever...."

  18. The following 4 users say "thanks"


  19. #30
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    5,516

    Default

    Thanks Suze. The concern is that it will stop working. At all. No matter what the dose.

    There are two I take infusion weeks, every 2 weeks. Then there is the need to take it periodically to stop a severe spasm. So, he doesn’t want me to suffer (in his words), but he also wants to be wise about the frequency. If it became too awful, I will just have to see him on an urgent fit in appointment and update the deterioration, I figure.

    I could likely get by with 1 per day, maybe 4 days a week, plus the need for spasm control, and IVIG (2).

    I have cut down Baclofen to 90mg daily from 120 and now the se’s arent unliveable, just uncomfortable (no STM, problems concentrating, feeling like I am going up ;and down on a carousel and around and round....

    THe cognitive stuff of getting pictures in my mind into articulated words in a timely fashion, is new with no med change. My Brain MRI is in June...

  20. The following 4 users say "thanks"


Page 3 of 8 FirstFirst 12345678 LastLast

Similar Threads

  1. March 2019: Keep on moving
    By Sunshine in forum Multiple Sclerosis
    Replies: 116
    Last Post: 03-31-2019, 03:17 PM
  2. February 2019: Keep on Moving Thread
    By Sunshine in forum Multiple Sclerosis
    Replies: 67
    Last Post: 03-02-2019, 10:32 AM
  3. January 2019: Keep on Moving Thread
    By Sunshine in forum Multiple Sclerosis
    Replies: 153
    Last Post: 01-31-2019, 08:32 AM
  4. Keep on Moving Club: April 2018
    By Sunshine in forum Multiple Sclerosis
    Replies: 80
    Last Post: 05-01-2018, 02:17 PM
  5. Keep On Moving: April 2017
    By Sunshine in forum Multiple Sclerosis
    Replies: 110
    Last Post: 04-30-2017, 10:39 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.