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Thread: Bladder, UTI issues and Stiff Person Syndrome

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Bladder, UTI issues and Stiff Person Syndrome

    We all know that some of us get bladder spasms.

    Today I find out I have my 3rd UTI since November. No wonder my SPS symptoms have been flaring up.

    Luckily , my tests by the urologist are schedule this week and next and hoping they figure out the problem. I suspect incomplete emptying and spasms.

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  3. #2
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    Good luck to you for the testing, Sunshine. I hope you get useful answers and a clear plan for going forward.

    ANN
    There comes a time when silence is betrayal.- MLK

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    Distinguished Community Member Sunshine's Avatar
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    Woke up to two spasms one at 12;30 am and one at 5:35 that wouldn’t stop so took Ativan so i could to Urogram today. Good judgment... urogram went well no spasm and had a ride both ways luckily. Home, and the Ativan is wearing off. Crossing fingers no more spasms....Put a message into neuro.

    Yesterday was IVIG and I had a brief spasm after.

    I attribute it to the smoldering UTI. Message Neuro for advice...

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    Urogram was yesterday, and Monday is Cystoscopy with urologist. Hoping to get results...

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    Tomorrow is the Cystoscopy and I am feeling nervous about it: it sounds so very uncomfortabl. I will take Ativan for it to prevent muscle spasm. My friend will go with me as a scribe since the Ativan makes it hard to recall what was said.

    Hopefully the doctor will run on time. It is so hard to wait sitting up...

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  11. #6
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    The cystosclopy wasnt as bad as I thought. Mildly uncomfortable and very fast. Waiting for lab results. It looked red inside per doc, no bladder stones, no bladder cancer. I think he is considering that bacteria has burrowed into the bladder wall and resisted antibiotics. Its demoralizing and causes leg stiffening...

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  13. #7
    Distinguished Community Member Sunshine's Avatar
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    Updated bladder issue in the Stiff Person Check in Thread. AM scheduled for outpatient surgical procedure in a few weeks. Anesthesia and the NPO thing could be dicey with SPS as indicated in other thread.

    Will type info on what the anesthesia pre op person says in a few days about handling this. My friend with SPS developed locked in syndrome after an outpatient surgical procedure. That suggests great care must be taken by the anesthesiologist.

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