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Thread: Plasmapharesis etc and MS

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Plasmapharesis etc and MS

    Nice to see that Multiple Sclerosis,Stiff Person Syndrome (and other autoimmune disorders) are mentioned as one of the targets of this therapy—- it means, at least to me, that researchers are keeping it in mind—-

    BTW—-never ignore info coming from business pages. This is how I learned , 14 years ago , that one of the injectible treatments for MS was given to patients like me (who kept it in their own fridges to self inject weekly)—that there were batches of the drug that were faulty—the pharma company told FDA it wouldn’t harm anyone. Of course, it harmed my heart and lungs. .. this is also how I learned that FDA depends upon the honesty of the pharmas in many instances, such as mine...it was an interesting, to say the least, go around between me, the pharma RN, the Pharma corporattion, an FDA representative, Mayo Clinic, tracking down what had happened.

    http://www.thebusinessinvestment.com...ing-2018-2028/

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  3. #2
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Sunshine View Post
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    Nice to see that Multiple Sclerosis,Stiff Person Syndrome (and other autoimmune disorders) are mentioned as one of the targets of this therapy—- it means, at least to me, that researchers are keeping it in mind—-

    BTW—-never ignore info coming from business pages. This is how I learned , 14 years ago , that one of the injectible treatments for MS was given to patients like me (who kept it in their own fridges to self inject weekly)—that there were batches of the drug that were faulty—the pharma company told FDA it wouldn’t harm anyone. Of course, it harmed my heart and lungs. .. this is also how I learned that FDA depends upon the honesty of the pharmas in many instances, such as mine...it was an interesting, to say the least, go around between me, the pharma RN, the Pharma corporattion, an FDA representative, Mayo Clinic, tracking down what had happened.

    http://www.thebusinessinvestment.com...ing-2018-2028/
    My iPad could not open the page. Plasmaphresis was something my neuro and I considered years ago, I remember.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  5. #3
    Distinguished Community Member agate's Avatar
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    I couldn't get to the link either.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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