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Thread: OT March Chit Chat

  1. #31
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    So, today I had the botox shots for my bladder, which went well...

    Unfortunately, they used a stand lift to get me on to the table and somehow ...either the lift or my wheelchair you've a deep.gash in my leg while they were standing me up. Deep enough to pour into the lift, the table, the blanket that was on me, and two thick gauze pads before they were able to stop it. And then a consult with a sound doctor who decided it would heal....in time...without needing stitches. So they bandaged it up and then proceeded with the botox shots

    The bladder looks good -- no stones this time. The leg looks bad and really hurts.

    It was not a very fun morning..

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  3. #32
    Distinguished Community Member nuthatch's Avatar
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    Here is another article about this subject. Apparently it's not just old people, but those with certain conditions too. I've seen so many of these drugs mentioned or recommended here, including the common Benadryl.
    https://www.theseniorlist.com/blog/n...imers-disease/

    Been struggling with health issues myself lately. Besides nearly every symptom of MS, I also suffer with extreme lymphedema in both legs, feet and toes, which has recently become an even bigger problem to deal with than MS. I have also developed the beginnings of a pressure sore on my rear and a lump by my collar bone that I have big concerns about.
    Called the new GP, explained, and the soonest I can get in is the end of the month!

    Saw my neurologist today and asked if he could recommend a GP and/or a lymphedema specialist. He told me that many doctors have left the area because Medicare (and I assume insurance companies) reimburse doctors at a lower rate than in large metro areas. The high cost of living in California is driving them to practice in other states or large cities! He could not recommend anyone!

    I've read this forum for nearly 20 years and am amazed at the superior medical care on the east coast as compared to what I've experienced here. Makes me want to throw in the towel. What is wrong with this country?

    Stepping down from my soapbox now. Grrrrrrrrrrrrr!
    Last edited by nuthatch; 03-05-2019 at 12:31 AM.

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  5. #33
    Distinguished Community Member nuthatch's Avatar
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    Sorry, Cat. That's terrible and should not happen in a medical setting especially! Hope you heal quickly.

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  7. #34
    Distinguished Community Member agate's Avatar
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    So sorry you had that accident, Cat--but it sounds good that no stitches were needed. Healing vibes being sent your way!

    nuthatch, I wonder if your neurologist might have been a bit too eager to hold forth about the Medicare situation instead of addressing your request. Is it possible that there is a lymphedema specialist around but you might have to ask around elsewhere? Have you tried doing an online search for such a person?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  9. #35
    Distinguished Community Member nuthatch's Avatar
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    I have found a group that treats lymphedema, among other vascular problems, that is about 30 miles away. I was hoping he might be able to direct me to someone in the immediate area, since I live close to a hospital. Travel is painful, especially with a pressure sore. Every bump in the road is torture in a wheelchair and believe me, the roads are bumpy!

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  11. #36
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Hugs to All)))))) ~

    Cat ~

    Good news about your bladder, but I'm sorry about your leg injury. You might try wrapping a paper towel soaked in witch hazel around the wound. That might help to relieve swelling and pain.

    nuthatch ~

    Just a couple of thoughts ...

    How about calling your hospital to see if they have lymphedema experts (ours is a physical therapist) and wound care nurses? Maybe you could get an outpatient appointment. Or, you could go to ER, so you can have your legs, pressure sore and collar bone lump examined. These are conditions that can't be left unattended for a long period, or they will worsen.

    How about asking your doctor to provide you with a home health care nurse? Given your mobility issues and the lack of physicians in your area, you should qualify for home health, and a nurse can assess you and provide you with treatment for your wounds, maybe even with the lymphedema.

    The quality of health care in California may depend upon where you live. We have access to all kinds of physicians in So. Cal, especially with UCLA, USC, and UC Irvine. I wish that you had more options.

    Healing prayers for all ~

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

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  13. #37
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    On dear! Don't let a pressure sore go untreated!! That is what led to my serious decline 4 years ago! Call your local hospital and ask if they have a wounc specialist, or "someone with experience in treating pressure sores". And ask about doctors affiliated with that hospital who are accepting Medicare patients. They should be able to tell you. You'll have to do your own research from there as doctors don't like to make one colleague over another, but there should be at least one in your area with experience in your area of need! .

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  15. #38
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by nuthatch View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Here is another article about this subject. Apparently it's not just old people, but those with certain conditions too. I've seen so many of these drugs mentioned or recommended here, including the common Benadryl.
    https://www.theseniorlist.com/blog/n...imers-disease/

    Been struggling with health issues myself lately. Besides nearly every symptom of MS, I also suffer with extreme lymphedema in both legs, feet and toes, which has recently become an even bigger problem to deal with than MS. I have also developed the beginnings of a pressure sore on my rear and a lump by my collar bone that I have big concerns about.
    Called the new GP, explained, and the soonest I can get in is the end of the month!

    Saw my neurologist today and asked if he could recommend a GP and/or a lymphedema specialist. He told me that many doctors have left the area because Medicare (and I assume insurance companies) reimburse doctors at a lower rate than in large metro areas. The high cost of living in California is driving them to practice in other states or large cities! He could not recommend anyone!

    I've read this forum for nearly 20 years and am amazed at the superior medical care on the east coast as compared to what I've experienced here. Makes me want to throw in the towel. What is wrong with this country?

    Stepping down from my soapbox now. Grrrrrrrrrrrrr!
    Sorry you are having these experiences. I used to describe my many MS symptoms as a whole ball of things and a few would be active at any given time. Last time I saw her she reminded me of what I had said and asked if it felt like all those symptoms were active all at once. Yup! That was it.

    Sometimes the fight is a bit too much and I feel like Minnie Mouse more than Wonder Woman.
    Last edited by Lazarus; 03-05-2019 at 11:01 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  17. #39
    Distinguished Community Member Sunshine's Avatar
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    How terrible, cat ! Sounds like negligence...

    Nuthatch—
    My friend picked her own wound care center from yellow pages for pressure sore as PCP REFUSED To even notice problem and got fast great care, fyi

    Re Lymphedema: when I started to use R2D2 90% of time, I noticed swelling in feet, ankles , toes. I determined it was due tp where the edge of the cushion was contacting my upper leg. DH shifted the seating and raise the feet (play with this) and voila, the swelling disappeared within 24-48 hours permanently.

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  19. #40
    Distinguished Community Member Sunshine's Avatar
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    Nuthatch, I think that dueto having a pressure sore, you will qualify with Medicare for a RoHo cushion. These are usually $350-600$ range and can help heal your sore, and also help prevent another.

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