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Thread: Stiff Person in the News Feed

  1. #11
    Distinguished Community Member Sunshine's Avatar
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    https://www.medpagetoday.com/meetingcoverage/aan/79664

    This is a new article from AAN meeting on SPS treatments. Very interesting. They talk about a new approach, using a certain cancer drug. Definitely read this and show it to your neuro if you are not a responder to standard approach.

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  3. #12
    Distinguished Community Member Sunshine's Avatar
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    There is an informational meeting in Connecticut about SPS, open to patients and families and professionals:
    http://stiffpersonsupport.org/wp-con...Conference.pdf

  4. #13
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    https://www.ncbi.nlm.nih.gov/pubmed/27065452#

    This study showed that people with GAD65 antibodies had worse SPS symptoms than those with the glycine receptor variety of SPS. People with GAD65 antibodies tended to be more present in females than males.

  5. #14
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    https://www.cureus.com/articles/2014...erature-review

    This is a case report on treatment of SPS

  6. #15
    Distinguished Community Member Sunshine's Avatar
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    Case report of misdiagnosis of Stiff Person Syndrome that was unresponsive to Baclofen and Benzodiazepines

    https://jamanetwork.com/journals/jam...stract/2732173

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  9. #18
    Distinguished Community Member agate's Avatar
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    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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  12. #20
    Distinguished Community Member Sunshine's Avatar
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    This woman, and mom, dxd SPS and morbidly obese. Lost her weight after a stroke, and took up Cross Fit and then competed in a handicapped competition of weight lifting: We might not do CrossFit, but, it is thought provoking of how we might do adaptive things to partly return to something we enjoyed with respect to movement—- unclear if the SPS dx was correct. She didnt respond to any treatments and did not mention her blood work on GAD65:

    https://www.shape.com/lifestyle/mind...lained-illness

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    joy

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