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Thread: Managing MS a full-time job?

  1. #1
    Distinguished Community Member agate's Avatar
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    Default Managing MS a full-time job?

    Another MS Website conducted a poll. The question was: Does managing your MS feel like a full-time job?

    The replies so far:

    Always 63% (165 votes)
    Sometimes 27% (72 votes)
    Rarely 6% (17 votes)
    Never 2% (4 votes)
    Not sure 2% (4 votes)

    How would you have voted?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  3. #2
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    Rarely for me. In the beginning it was harder.

    Managing health, not just MS, is a full time job right now.

    ANN
    There comes a time when silence is betrayal.- MLK

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  5. #3
    Distinguished Community Member agate's Avatar
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    I wonder if some of us may have had MS for so long that we make little adjustments during each day without even thinking--adjustments others don't need to make.

    I noticed a few people recently talking about counting their steps in accomplishing routine tasks. That's the kind of thing someone more able-bodied wouldn't need to do.

    Just having to ask yourself before everything you do, "Can I get away with doing this? How long can I stand up/move my arms/read/talk (etc.) before I give out?"--that's the kind of thing some of us may be so in the habit of doing that we just no longer realize that it's not the way people without MS live.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #4
    Distinguished Community Member Howie's Avatar
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    Quote Originally Posted by stillstANNding View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Rarely for me. In the beginning it was harder.
    The same here.
    Evolution spans the Universe.

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  9. #5
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    Always, because of the things you named Agate. Also, when I am sick in other ways, it feels like I am fighting two things and not just what I am sick with at the time - for instance when I had shingles. I kept thinking what is this going to do to my MS?
    Virginia

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    Distinguished Community Member Lazarus's Avatar
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    For me it is always. Maybe it was most of the time in previous decade. Now it is always. Everyday. All day long. But I manage it and so still remain involved with this world.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  13. #7
    Distinguished Community Member Cherie's Avatar
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    Rarely for me. A lot harder 20 years ago than it is now but I also feel that treatment has slowed the progress and lessened the symptoms.

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    Distinguished Community Member renee's Avatar
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    I'm with Ann. I consider myself a paraplegic with all the BS asociated w/that- skin breakdown concerns, urinary track madness. My para self also has chronic fatigue which messes with me and my ability to fulfill normal daily activities, obligations and have normal relationships.
    In darkest times I question my value even being here.
    That's the most persistent battle but I have no problem seeking help because, the world is pretty darn cool even when there is so much chaos.
    Howie, 65 is young! Do I have to smack you.
    At 64 I find myself looking at older men thnking, "What a nice, good looking 72 year old, grey haired guy." Being older makes it easier to demonstrate what you are and to see into some one's heart and soul.
    Last edited by renee; 12-05-2018 at 03:32 PM.

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  17. #9
    Distinguished Community Member Howie's Avatar
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    Cool

    Quote Originally Posted by renee View Post
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    Howie, 65 is young! Do I have to smack you.
    Sure. Hey, put that belt down! HELP!!!
    Evolution spans the Universe.

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  19. #10
    Distinguished Community Member renee's Avatar
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    Please, behave.

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