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Thread: OT December Chit Chat

  1. #71
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    Sunshine, sounds like a bad night. I do hope that things get better VERY soon.
    Virginia

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  3. #72
    Distinguished Community Member Cherie's Avatar
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    Sunshine,
    So sorry this is not getting better.

    Howie,
    Glad you got checked out and new treatment. Be careful about position changes as with three new BP meds, your pressure could drop enough to have you light headed or even passing out.

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  5. #73
    Distinguished Community Member nuthatch's Avatar
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    From what I read, a big icy storm is headed your way Virginia, Howie too I think. Hope you have prepared. Be safe and don't go out!

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  7. #74
    Distinguished Community Member Sunshine's Avatar
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    My house has MS right now. The breakers keep blowing. THe newer ordinances require breakers to trip at the least provocation. Siemens has sent a specialist to determine it. It seems that the dimmer switches are the culprit for most of the house and we will change them out.

    The wifi and cell reception due to wifi issues, are a different issue.The culprit might be the battery back up. Luckily, we have a great contractor who is on it like a dog on a pork chop.

    My hands are terrible in the morning, so I dont type as much. Once the Baclofen starts at 6 am, i get mild nystagmus which makes me lie down;. DH will take me for a haircut so I look less crazy today.

    Neuro is the 18th and has been in touch with me about the bad nights. Last nigh was better. And I learned to stay in bed and not use the bathroom before 4:30 am as the legs are worst after midnight. Despite huge doses Bac and Tiz.

    IVIG Wed and he will dose me with Ativan pills hour before to prevent spasms.

    Thats all i can type now. It brings to me Sally. I get it now why she couldnt participate in the board. But i think of you. I cant even run the SPS board for now. Still hopeful.

    UTI is resolving. NEuro hopeful that as it resolves, so will the SPS settle down. And the MS>

    Boy did I ever win the lotto on getting both diseases?

    You are all my heroic warriors. KEep on keeping on.
    Last edited by Sunshine; 12-08-2018 at 02:29 AM.

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  9. #75
    Distinguished Community Member Sunshine's Avatar
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    Oh, and I did want to say that I jumped on ruling out UTI because of Cat’s current experience. Might’ve waited longer to see the doc, especially since the problem was bladder dysfunction, and not really pain usually get with UTI. I recalled my MIL as she aged didnt get pain with UTI and thats common in older people. She would get worsening dementia with it. That was always the tip off.

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  11. #76
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    Hi Sunshine, thanks for taking the time and effort to stop in and bring us up to date.

    Your house problems will be resolved. And it sounds like you have a caring team to help you get the SPS/MS under control. Including your husband.

    Glad that they found the UTI and it’s being treated. You should have some relief after 48 hours of antibiotics.

    I have started to be grateful for everything: a night of mostly sleep; the sun; a tiny, tasty meal; a text; a cat on my lap. It has helped me.

    ANN
    There comes a time when silence is betrayal.- MLK

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  13. #77
    Distinguished Community Member agate's Avatar
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    Sunshine, moving is terribly disruptive no matter how hard you try to keep it calm. That's one thing I'm fairly sure of. But "Rome wasn't built in a day" and other sayings like "Slow but steady wins the race" come to mind.

    And there isn't a race. If something doesn't get done today, maybe it will get done tomorrow. The important thing is to get your health back on as even a keel as possible.

    With moving there's often the temptation to want things "all settled"--everything in working order and put away so a person can get on with life and stop worrying about Things--but that's a temptation that has to be resisted.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #78
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    Sunshine, thanks for coming on even when you probably did not feel like it. Listen to the hens above. They are giving you good advice (and leaving Howie alone today it seems). I do hope as the UTI clears up you will begin to feel better. It has got to be frustrating to just move into a new house and not be able to do the things you want to in that house. But you just must let others take good care of you right now. Think about the ocean and remember that when it gets warm again, you will want to be well enough to try a little surfing.


    Nuthatch, thanks for thinking of me and the snow. It is supposed to start after midnight tonight. We scheduled for 3 to 6 inches. We will see. I am not sure about Howie, as I have been out for quite awhile this afternoon and have not had a chance to check on that area. I hope things are doing a little better in California, but I know they are not for the residence, or former residence of Paradise.

    Howie, I always buy Eggland's Best eggs, but today Harris Teeter was out of them and I had to buy another brand. In looking around I saw some eggs that said on the side "love those hens". I thought of you and my thought was that there was one person who would probably not love a few sometime - when they were getting on him. Glad Cherie gave you some good advice. Hope you are feeling alright on all this new medicine.
    Virginia

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  17. #79
    Distinguished Community Member Sunshine's Avatar
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    The house stuff will resolve. The main problem is when the breaker trips and all of my phones do not operate until I can get to the fuse box which is not an easy thing for me. This will be especially true today because I am waiting for delivery of my medical marijuana and they rely on calling you to remind you that they are on their way.

    I had a better night last night. Unfortunately I had vertigo when I got out for a couple hours but that seems to have resolved. And Nystagmus is nearly resolved to. Probably due to the reduction of Baclofen buy 10 mg.

    I will try to participate when I can.

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  19. #80
    Distinguished Community Member Jeanie Z's Avatar
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    :) Friday the tree man came and cut down both mango trees in the front yard. They got picked clean by others anyway. Also the roots cracked my concrete drive and are getting in the neighbor's septic tank drain field.

    Last night I wound up on the floor transferring from my desk chair in the computer room to my scooter. I pushed the panic button and ADC called and sent the paramedics. They used the code to get the key to the front door to get in.
    They lifted me straight up to standing and helped me go to bed.

    After they left I had to go to the bathroom an did and also cut off the lights that were left on. I am really worried that my legs are not getting strong enough for when I am tired.

    Sunshine take it easy and enjoy your new house. Howie have a good birthday. I am happy to be in Florida and not have to worry about snow. I have the AC on. Jeanie :)

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