Good afternoon all! It's been a while since I was last on a forum page. Last one was CranioKids.org That's been a few years. Thanks to the world of Facebook and stuff, forums are hard to find these days. Good to see this one so active.
Anyway, I'm a mom of two living children and one angel. Been married 14 1/2 years almost. Both of my children but especially my son are why I research so much about neuro stuff.
My daughter has Bicoronal Craniosynostosis, Muenke Syndrome, Hearing Loss, Asthma, Chronic Headaches, Acquired ADHD , Visual perception & spacial Disorder, Mild neurocognitive disorder disorder NOS brain damage/issues with that, Memory disorder, Frontal Lobe & Executive Function Deficit.
My son has as of June 2018 been diagnosed with: Multi-suture craniosynostosis & Muenke Syndrome, Developmental Delays, Chiari Malformation, Platybasia, Basilar Invagination, Syringomyelia, 1q44 deletion along with a few other microarray changes, Hypotonia, an unspecified connective-tissue disorder, hypoglycemia, focal epilepsy, encephalomalacia and ADEM.
I look forward to getting to know more of you and sharing stories.
Anyway, I'm a mom of two living children and one angel. Been married 14 1/2 years almost. Both of my children but especially my son are why I research so much about neuro stuff.
My daughter has Bicoronal Craniosynostosis, Muenke Syndrome, Hearing Loss, Asthma, Chronic Headaches, Acquired ADHD , Visual perception & spacial Disorder, Mild neurocognitive disorder disorder NOS brain damage/issues with that, Memory disorder, Frontal Lobe & Executive Function Deficit.
My son has as of June 2018 been diagnosed with: Multi-suture craniosynostosis & Muenke Syndrome, Developmental Delays, Chiari Malformation, Platybasia, Basilar Invagination, Syringomyelia, 1q44 deletion along with a few other microarray changes, Hypotonia, an unspecified connective-tissue disorder, hypoglycemia, focal epilepsy, encephalomalacia and ADEM.
I look forward to getting to know more of you and sharing stories.
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