Results 1 to 5 of 5

Thread: Newbie

  1. #1
    New Community Member
    Join Date
    Oct 2018
    Location
    Arkansas
    Posts
    6

    Cool Newbie

    Good afternoon all! It's been a while since I was last on a forum page. Last one was CranioKids.org That's been a few years. Thanks to the world of Facebook and stuff, forums are hard to find these days. Good to see this one so active.

    Anyway, I'm a mom of two living children and one angel. Been married 14 1/2 years almost. Both of my children but especially my son are why I research so much about neuro stuff.

    My daughter has Bicoronal Craniosynostosis, Muenke Syndrome, Hearing Loss, Asthma, Chronic Headaches, Acquired ADHD , Visual perception & spacial Disorder, Mild neurocognitive disorder disorder NOS brain damage/issues with that, Memory disorder, Frontal Lobe & Executive Function Deficit.
    My son has as of June 2018 been diagnosed with: Multi-suture craniosynostosis & Muenke Syndrome, Developmental Delays, Chiari Malformation, Platybasia, Basilar Invagination, Syringomyelia, 1q44 deletion along with a few other microarray changes, Hypotonia, an unspecified connective-tissue disorder, hypoglycemia, focal epilepsy, encephalomalacia and ADEM.

    I look forward to getting to know more of you and sharing stories.

  2. The following 2 users say "thanks"


  3. #2

    Default

    Welcome to BrainTalk (BT), CranioChiariMom!

    I'm so happy you have found our forum family.

    If you have any questions as to how to use the forums, you may pm me or use the "Moderator Connection" forum.

    We have a wonderful Child Neurology forum, which you can access by clicking on the following link: http://braintalkcommunities.org/foru...hild-Neurology. There is also a thread at the top of every forum which says "Archives". You could scan the thread titles there and see if any previous members have had problems similar to the ones you are dealing.

    I am sure more members will drop by to welcome you soon!

    Moderator #7
    Moderator #7

    It's really easy to put someone on ignore and it's strongly recommended that you do so with people whose posts you don't like.

    Step 1 - log in
    Step 2 - click on the "settings" link
    Step 3 - click on the "edit ignore list" link on the left side of the screen
    Step 4 - type (or paste if you copied and pasted it) the username of the person you want to ignore
    Step 5 - click the "ok" button on the right of the screen

    One important note though, this won't hide quoted posts. It's an oversight on the developers part and it's not an easy thing to "fix." So if someone quotes someone you have ignored, you'll see the quote.

    Alternatively when you click on a person's name and view their profile page, underneath their avatar, there is a option that says, "Ignore this person". Click that link and then click the yes button.

  4. The following 3 users say "thanks"


  5. #3
    New Community Member
    Join Date
    Oct 2018
    Location
    Arkansas
    Posts
    6

    Default

    Sorry, we also deal with hypothyroid. Forgot that one.... It's not Hashimotos at this point but without meds, his TSH is really high.

  6. The following 2 users say "thanks"


  7. #4
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    8,191
    Blog Entries
    12

    Default

    Welcome, CranioChiariMom!


    I am usually on the MS board but noticed your thread. Yes, message boards have had a dwindling supply of people in recent years but we're still here.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  8. The following 2 users say "thanks"


  9. #5
    New Community Member
    Join Date
    Oct 2018
    Location
    Arkansas
    Posts
    6

    Default

    I can understand how things dwindle down yet sometimes it's nice to see the "old school" still vs everything being on Facebook.

  10. The following user says "thanks"


Similar Threads

  1. Newbie
    By Morgraal in forum Colloid Cyst
    Replies: 6
    Last Post: 05-19-2017, 06:24 AM
  2. Newbie
    By apelo in forum Trigeminal Neuralgia
    Replies: 5
    Last Post: 03-29-2017, 05:29 AM
  3. Newbie
    By confusedpenguin in forum New member introductions
    Replies: 5
    Last Post: 07-15-2012, 10:59 PM
  4. Old newbie
    By LindaQuilts in forum New member introductions
    Replies: 4
    Last Post: 03-01-2012, 08:53 AM
  5. Newbie - Hello
    By licorice in forum Multiple Sclerosis
    Replies: 14
    Last Post: 01-04-2012, 11:24 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.