Results 1 to 7 of 7

Thread: About ampyra.....there is now a generic....made by the same company

  1. #1
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    1,449

    Default About ampyra.....there is now a generic....made by the same company

    So, I have been taking ampyra to help me walk for quite a few years. My copay for the last few years has been $30 a month. When I went to reorder I was tole the copay would be $65 each month. So, I asked why it had increased. No one at Caremark specialty drug pharmacy could answer my question.

    This led to 4 hours of phone calls where I was tossed back and forth from billing department to drug maker to billing department.. several people gave me answers about my insurance that did not fit the situation. Finally one fellow was convinced he knew the answer and sent an expedited notice to my neuro to get her to refill. OI-vez!

    Finally, one whole day letter, I got a phone call. Turns out that my copay had jumped because there was now a generic form and my copay would be $10.00 each month. Did I want to switch? Hell yes! The Caremark official was the one who told me that the generic was being made by the same company which made the original.

    One huge half day of round around phone calls because the message did not go from a to b to c.

    Thought some of you might be able to use this info.
    Last edited by Lazarus; 10-11-2018 at 02:12 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  2. The following 7 users say "thanks"


  3. #2
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,449

    Default

    Thanks, and good work tracking it down!

  4. The following 5 users say "thanks"


  5. #3
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    W. Mass
    Posts
    195

    Default

    I just wrote a whole thing and itís gone. Ampyra was a miracle for me and then it stopped working after a few years. It had Given me part of my life back.
    I decided to give it another try a few months ago. My copay was,$300. Sadly it did nothing for me.
    Glad it is more accessible for those that take it.
    Last edited by ssusan; 10-11-2018 at 01:31 PM.
    Be the person your dog thinks you are

  6. The following 7 users say "thanks"


  7. #4
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    8,483
    Blog Entries
    15

    Default

    ssusan, that was quite a hefty copay. Too bad that Ampyra didn't help!

    You mentioned losing a post. Have you tried starting a new reply window and clicking where it says "Click here to restore auto-saved content"? That message usually comes up when I do that, and I see the message I thought I'd lost.

    Sometimes it brings up an earlier message but usually it works pretty well.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  8. The following 6 users say "thanks"


  9. #5
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    W. Mass
    Posts
    195

    Default

    Good to know. Thanks
    Be the person your dog thinks you are

  10. The following 4 users say "thanks"


  11. #6
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    W. Mass
    Posts
    195

    Default

    If Ampyra worked as it did when it first came out, it would be worth every penny. It was a miracle drug.
    But alas, no. It did nothing. :-(
    Be the person your dog thinks you are

  12. The following 3 users say "thanks"


  13. #7
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    8,483
    Blog Entries
    15

    Default

    It must depend on the individual. Some people claim that Ampyra has improved their walking.

    We just have to keep trying first one thing and then another and hope we find some things that work, I guess.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  14. The following 4 users say "thanks"


Similar Threads

  1. Anyone taking Ampyra now?
    By agate in forum Multiple Sclerosis
    Replies: 29
    Last Post: 10-21-2017, 07:55 PM
  2. Accorda...makes Ampyra...helped me with copay
    By Lazarus in forum Multiple Sclerosis
    Replies: 7
    Last Post: 09-20-2015, 10:43 AM
  3. Replies: 12
    Last Post: 05-18-2015, 08:17 PM
  4. Abstract of a study if Ampyra
    By Lazarus in forum Multiple Sclerosis
    Replies: 1
    Last Post: 12-12-2014, 08:49 PM
  5. Replies: 6
    Last Post: 01-21-2012, 05:23 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.