Page 6 of 21 FirstFirst 123456789101116 ... LastLast
Results 51 to 60 of 206

Thread: OT August Chit Chat

  1. #51
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    4,231

    Default

    Thanks everyone! I was delighted to say the least. I do not want to give up my medicine.
    Virginia

  2. The following 7 users say "thanks"


  3. #52
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    3,043

    Default

    I’m very happy for you, Virginia. That’s a relief, I’m sure.

    How’s your eye?

    We went to an excellent Greek restaurant today. I had the Greek egg lemon soup and MIL had artichoke- spinach soup. Peter had a roasted veggie sandwich in a pita and we all had really good Greek salads. :-). Vicky would read this and get hungry.

    ANN
    There comes a time when silence is betrayal.- MLK

  4. The following 7 users say "thanks"


  5. #53
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    6,530

    Cool

    Heck, it's making ME hungry!
    Evolution spans the Universe.

  6. The following 7 users say "thanks"


  7. #54
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,684
    Blog Entries
    1

    Default

    ((((((Hugs to All)))))) ~

    Virginia ~

    I join the chorus of celebration that your medication situation has been resolved! What a relief for you. It's always wonderful, when something good happens.

    Linda ~

    Sending healing prayers for John, and for you, as I understand how stressful it can be to care for an ill husband. If you need help, please don't hesitate to ask for it, whether from family, friends, or a visiting nurse.

    ANN ~

    We love Greek food too! You're making my mouth water. Our favorite Greek restaurant closed for years, then the owner's son reopened it with a different menu (geared toward millennials, I think ~ tapa). He then closed down, and there are no replacements near us. Nonetheless, unless it can be delivered, we won't go out to pick it up.

    We also miss Indian food. That is just too much work for me to prepare any longer. And my Greek meals never compare to the real thing. Long before we met, when he was young, Jim vacationed a few times in Greece. So, he wants authentic Greek cuisine. And, I'm not Greek.

    Love and prayers for all ~

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

  8. The following 9 users say "thanks"


  9. #55
    Distinguished Community Member Cherie's Avatar
    Join Date
    Oct 2006
    Location
    Southeastern NE
    Posts
    1,530

    Default

    Virginia,
    I think I would still be on Rebif if I could get consistent funding. On Medicare, I always had to pay the first $4800 then once I was in catastrophic coverage area I could get funding for a year (generally by May or June) However, the "year" always resets January 1 and funding is never open for MS drugs then so there was great inconsistency that I lived with for about three years before just plain giving up.

    We seem to be collecting newly widowed people after church on Saturday evenings and bringing them home for dinner and conversation. We started this about 15 years ago with Jacques, a former POW from Paris from WWII who had been widowed twice. He went with us to church then home for dinner and Yahtzee every Saturday evening. He died a little over two years ago and Steve, who is my age started coming occasionally after his wife died of Melanoma. Now we have Dorothy for the past 4 months and tonight Juliette joined us. Both have lost spouses recently. It seems we are a place where folks come for a casual home cooked meal after church with others who know what they are experiencing. I see a network of friendships growing from this. Food is simple and generally comfort food although occasionally it can be sirloin tips or pork chops or chicken on the grill with a big salad. Tonight was ground turkey sauteed with onion and mushrooms in a gravy over rice and peas and coffee ice cream. You see folks coming in tense and going home smiling and relaxed.

  10. The following 9 users say "thanks"


  11. #56
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    6,530

    Cool

    I sure am feeling tense......Cherie!!!
    Evolution spans the Universe.

  12. The following 8 users say "thanks"


  13. #57
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    4,231

    Default

    Ann, the man I saw for 18 years loved Greek. He had spent a lot of time there. I also love it, but do not have anyone that cares to go with me to a good Greek restaurant. I have been thinking of going an picking up something to take out, but the best Greek restaurant (or I assume it still is) is not close to me. You made me want it even more.

    Cherie, there always is that problem of funding. If the Pharmacy had not remembered me and gotten it for me I would not have it. This is a place I had not heard of. It is not PAN. The letter that I got from them said it was from June 29th through May 31, 2019. However, the money will run out by early February, so it will not last that long and I don't know if they will have more or not. It is anxiety provoking to say the least, kind of like living on the edge all the time.

    You are doing the very best thing you could do for these people who have lost their spouses. Hopefully, they will form a friendship on their own to share with. I was in a grief seminar after that happened to me and 5 of us bonded and stayed close, having dinner, etc for years. We all knew where the other one was in their grief. We were all widowed in either February, March or April of 1987. Everyone is dead now but me. I was the youngest, but still just as close to them if not closer. They kind of tried to watch out for me. One of them sent me to the Doctor who finally listened to me about my MS symptoms and diagnosed me, while other Doctors just thought I was either crazy or complaining. I often wonder what I would have done without her. She was the one person I felt comfortable turning to for many years. I miss them, but her especially. If you keep this up you will be Blessed by what comes out of it.
    Virginia

  14. The following 9 users say "thanks"


  15. #58
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,943

    Default

    Bless you Cherie.

  16. The following 7 users say "thanks"


  17. #59
    Distinguished Community Member
    Join Date
    Oct 2015
    Posts
    989

    Default

    So...….I spent much of yesterday in the emergency room of our local hospital. Had something called an "inspissated mucus ball"......basically a mucus ball in your...uh...."tube where solid waste exits your body.." I have an ostomy -- had the colostomy about 4 years ago, now, and have had no complications...until Friday night....when fecal matter started coming out of my rear end (where it comes out with "normal" people who defecate normally). Woke up Saturday morning having soiled my bed. Ugh. So, after almost an hour on the phone, being shifted from 'on call nurse" to "on call nurse" to "on call nurse", finally found the "right" one -- the one that accepts my health insurance and -- more importantly -- knew what was going on -- TC and I headed off to the emergency ward for basically a rotor-rooting out of my lower intestines.

    Apparently, when defecation does NOT occur normally through the normal exit, mucus can build up, dry out, harden...then sit there, blocking movement of other fecal matter from moving up and out through the ostomy. In my case, the mucus ball was golf-ball sized...just sitting there, blocking up stuff. Now, I felt no pain, no particular discomfort...just the mess in my bed.

    So, after filling out a bunch of forms, and putting up with having to be manually lifted up on to an exam table (the *emergency room* did not have a stand lift, or a hoyer lift!!), I was administered an enema... Then a wait for the enema to work.....then a manual probing and dislodging of the mucus ball....then a "clean up in aisle five"......my colostomy then sprung a leak (all that dragging around and moving around, dressing/undressing without due care). So I had to change the colostomy appliance. Again... *the emergency room*...did not have any colostomy supplies!! (I carry those with me wherever I go....). Then...finally....sent home. No particular follow-up....apparently these things "happen" with colostomies, and other conditions where bowel movements aren't "normal".....

    How was YOUR Saturday??


  18. #60
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    3,043

    Default

    OMGoodness, Cat! What a time you’ve had! Get some rest! So, glad it wasn’t worst but still sounds awful.

    ANN
    There comes a time when silence is betrayal.- MLK

  19. The following 6 users say "thanks"


Page 6 of 21 FirstFirst 123456789101116 ... LastLast

Similar Threads

  1. OT August Chit Chat
    By Pegakafarmgirl in forum Multiple Sclerosis
    Replies: 251
    Last Post: 08-31-2017, 09:36 PM
  2. OT August Chit Chat
    By Pegakafarmgirl in forum Multiple Sclerosis
    Replies: 396
    Last Post: 09-05-2016, 08:43 PM
  3. OT August Chit Chat
    By Pegakafarmgirl in forum Multiple Sclerosis
    Replies: 284
    Last Post: 08-31-2015, 10:27 PM
  4. OT August chit chat 2
    By Howie in forum Multiple Sclerosis
    Replies: 166
    Last Post: 08-31-2014, 04:43 PM
  5. OT August Chit Chat
    By Pegakafarmgirl in forum Multiple Sclerosis
    Replies: 57
    Last Post: 08-30-2012, 08:34 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.