Here are useful websites...some are research, university sites. Some are patient experiences.
The site that’s incredibly useful and comprehensive (start with it first) is:
http://www.thetinman.org/
Other sites include:
https://themighty.com/2017/08/tin-man-syndrome/
https://www.hopkinsmedicine.org/neur...ome/index.html
https://rarediseases.info.nih.gov/di...erson-syndrome
http://www.thetinman.org/
https://www.ninds.nih.gov/Disorders/...formation-Page
https://www.disability-benefits-help...ity-disability
https://healthylivingmagazine.us/Articles/11108/
I will add to this thread until it’s more complete. So stay tuned...