Useful sites for learning about Stiff Person Syndrome

[Sunshine]

Here are useful websites...some are research, university sites. Some are patient experiences.
The site that’s incredibly useful and comprehensive (start with it first) is:

http://www.thetinman.org/


Other sites include:

https://themighty.com/2017/08/tin-man-syndrome/


https://www.hopkinsmedicine.org/neur...ome/index.html


https://rarediseases.info.nih.gov/di...erson-syndrome

http://www.thetinman.org/

https://www.ninds.nih.gov/Disorders/...formation-Page

https://www.disability-benefits-help...ity-disability

https://healthylivingmagazine.us/Articles/11108/

I will add to this thread until it’s more complete. So stay tuned...

[Sunshine]

https://www.facebook.com/groups/spsaonline/

This is a closed group you can join. Closed means google can’t search it. Only members see posts. But it’s not anonymous unless your FB name is fake.

[Sunshine]

https://www.disability-benefits-help...ity-disability

https://www.ncbi.nlm.nih.gov/pubmed/16391401

https://www.ncbi.nlm.nih.gov/pubmed/15959668

[Sunshine]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3087284/

[Sunshine]

https://www.ncbi.nlm.nih.gov/pubmed/29532593

https://www.ncbi.nlm.nih.gov/pmc/art...624524960title

https://www.nytimes.com/2018/01/10/o...ht-region&_r=0

[Sunshine]

https://www.raredr.com/videos/scott-...erson-syndrome

[Sunshine]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3335758/

[Sunshine]

https://www.ncbi.nlm.nih.gov/pubmed/21711262

[Sunshine]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2878280/

[Sunshine]

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2676978/

An article about GAD65 patients vs Amphiphysin patients