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Thread: Useful sites for learning about Stiff Person Syndrome

  1. #11
    Distinguished Community Member Sunshine's Avatar
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  2. #12
    Distinguished Community Member Sunshine's Avatar
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    https://medicine.yale.edu/neurology/...cular/sms.aspx

    Shame on Yale for calling it Stiff Man Syndrome. Otherwise, a useful site

  3. #13
    Distinguished Community Member Sunshine's Avatar
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    http://www.livingwithsps.com/blog

    Interesting and informative personal website of SPS patient

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    Distinguished Community Member Sunshine's Avatar
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    https://ard.bmj.com/content/64/9/1365.full

    Rituximab as a treatment for bedridden Stiff Person Syndrome patient.

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    Distinguished Community Member agate's Avatar
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    I don't know if this is something the people here will want to see but if not, just say the word and I'll remove it or ask to have it removed. The video shows this person having to deal with the SPS spasticity--"Meet Kylie Allen-Kulyk, One in a Million, with Stiff Person Syndrome" from YourErie.com (February 20, 2019):

    https://www.yourerie.com/news/local-...ome/1796716089
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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