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Thread: Webinar tonight on emerging treatments...I copied the email I got

  1. #11
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    There are probably others who will come along with more information on it, and maybe we will get a transcript.

    There is not much out there for fatigue. That is another thing I picked up. They are trying to come up with an extended release form of Amantadine, and recommending exercise and good healthy lifestyle.

    They are also thinking they might recommend going to 5 to 6 weeks on Tysabri infusions instead of 4. People could then stay on it longer before there was any danger to them.

    I am more concerned about the possibility of giving up my DMT than I was before, after hearing him say that people who have been on long term therapy and come off it are more likely to go down hill.
    Virginia

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  3. #12
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    How long does it take before transcripts usually come out? There are some things I want to review before I see my Neurologist next month. Some parts of it went a little fast for me last night. One thing was that I was not prepared because I didn't think I had registered properly.
    Virginia

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  5. #13
    Distinguished Community Member agate's Avatar
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    I don't know how long it will be but I sent them a message asking. I'll let you know if I have a reply.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #14
    Distinguished Community Member Lazarus's Avatar
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    This is a link so you can watch last night’s presentation. At least I could view it...just have not had time.

    https://www.cando-ms.org/multiple-sc...eries/archives
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  9. #15
    Distinguished Community Member agate's Avatar
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    I watched the presentation, and special thanks to Linda for providing a link.

    I thought it was a very clear and balanced presentation. What I saw was the slides with accompanying commentary by Dr. Thrower. Well worth it, and with the archived version I could pause it as needed and return later.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  11. #16
    Distinguished Community Member Howie's Avatar
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    Quote Originally Posted by agate View Post
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    Well worth it, and with the archived version I could pause it as needed and return later.
    If you would quit drinking that beer, you wouldn't have to pause it so much to take bathroom breaks!
    "A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."

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  13. #17
    Distinguished Community Member agate's Avatar
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    Good point, Howie. I think I'll switch to rum.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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