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Thread: Partners in MS Care = MS Centers?

  1. #11
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    About the regionalization of the NMSS, Cherie. We had a big, vibrant Massachusetts chapter. A state publication that was worth getting. Now we have been lumped in w NH, ME, and VT. I get notices of things ridiculously far away from them and the local publication is more like a letter.

    ANN
    There comes a time when silence is betrayal.- MLK

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  3. #12
    Distinguished Community Member Cherie's Avatar
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    Quote Originally Posted by stillstANNding View Post
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    About the regionalization of the NMSS, Cherie. We had a big, vibrant Massachusetts chapter. A state publication that was worth getting. Now we have been lumped in w NH, ME, and VT. I get notices of things ridiculously far away from them and the local publication is more like a letter.

    ANN
    Nope: it is all 5 NE States but CT which has a HUGE chapter and a summer camp at the Easter Seals facility near Hartford. I, too, feel like we have all lost benefit and program and personalization. For the past three years, someone from the Boston office has called, (when I have inquired) to ask me to do a "canned" program in RI for a meeting. I am sorry , but the programs that are "canned" like "mood and MS", "Cognition and MS", "Relationships and MS", should be online and the in person programs should be personal and relatable. That is my personal and professional opinion. The NMSS has diminished greatly with this move to regionalize and "can" its programs.

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  5. #13
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    Oh, RI is in w the rest of us? Sad for the whole bunch. Our magazine was award winning.

    ANN
    There comes a time when silence is betrayal.- MLK

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  7. #14
    Distinguished Community Member Cherie's Avatar
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    Ours too. No longer. Now it is a folded over bunch of bulletin that has little local information or story at all. I hate it. And I dislike the canned programs that are coming from National that really don't address what we want to hear. They get a doc or nurse or therapist to show the slides and read their narration and then that person may or may not be able to answer the questions raised by the group. Also, they expect the professional to donate their time to do the program. NINE CENTS out of every dollar raised goes into programs that assist us as PWMS. 47% goes towards research and the rest towards salaries and rents.

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  9. #15
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    I also wanted to make it clear that, "Partner's in MS Care" is not the same as Partner's Healthcare which has an excellent MS Center at the Brigham in Boston.

    ANN
    There comes a time when silence is betrayal.- MLK

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  11. #16
    Distinguished Community Member Cherie's Avatar
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    I know! I thought it strange that they used that name when it is already a Nationally recognized specific MS Center.

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