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Thread: CSF leak - intermittent

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  1. #1

    Default CSF leak - intermittent

    Hi, I have had suspected CSF leak for over a year now and have today had a CTM and a few targeted BP's.

    There is a very suspect looking bone spur at T6/7 that on MRI appears to be puncturing the dura. This is the area the BP's were done.

    Bad news for me is that the CTM did not show a leak.

    What was found is that I'm in HP. I had an opening pressure of 23.5.

    Some of my symptoms include a post nasal drip that I can alter the flow with differing body positions. There's the headache and all the other CSF leak symptoms. (Tinnitus, stiff neck/shoulders)

    After these bp's, i now have a supine headache that goes away on standing, so I think the BP,s may have sealed and put me into even higher pressure.

    I have some diamox to help with that as my vision is blurry and I don't want to make it worse.

    Has anyone has similar symptoms?

    What I think is happening is the leak is intermittent and it sent my Brain CSF production haywire.

    Hopefully time will tell

  2. #2
    Distinguished Community Member agate's Avatar
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    Oct 2006
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    Welcome, Schmick!

    People here aren't doctors. I suspect that I'm not the only one here who doesn't know what some of your abbreviations stand for. BP, CTM, HP?

    A CSF leak is a potentially serious condition but it sounds as if tests have revealed that you don't have a CSF leak.

    I'm sorry that I can't be more helpful.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous

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