Hi there!! Looking for some advice. Post 19days an epidural steroid injection, about 16 hours after the injection I started to vomit A LOT for 12 hours, then this headache, pressure in my head and a ‘waves’ like sound in my head/right ear started along with continued nausea & vomiting.
After going to the ER 2x and them saying it was viral, they gave me IV fluids and sent me home.
I FINALLY got ahold of the pain doctor who did the ESI and he stated it was a Spinal Headache and performed a blood patch. The blood patch worked for about 30hrs and this unrelenting headache came back. When I wake up in the morning I don’t notice the headache until I stand up and start to try and do things, once all the symptoms have started I need to lay back down and usually after about 20-30mins the headache and symptoms are gone again, with the exception of the nausea & vomiting.
After continuous conversation with the Pain Doctor, I have begged him to try the blood patch again because I figure if it worked for a little while MAYBE I just didn’t rest enough and somehow screwed it up. I thought I FINALLY got him to agree on Tuesday, so I met up with him on Wednesday and he at that point said he was going to order a CT of my head and spine, those all came back normal so he decided against the blood patch and said he is going to order an MRI, discouraged and crying I asked him WHY he can’t just do the blood patch and God forbid if it doesn’t work then we go to the MRI. He still said no.
He was able to get me into the hospital for an urgent MRI 2 days later. Well, the MRI as well came back normal as I just found out. Now, the pain dr said he is going to consult with Neurology and he wants me to ‘hang in there’. He told me I could stop with the hydration and caffeine but continue with the Tylenol and Ibuprofen..
So, how long am I am going to have to continue to suffer? I cannot afford all this as I am unable to work due to the inability to stand up and do things for long periods of time without me feeling like my head and neck are going to
After reading A LOT up on the internet the last day and a half, I have read about testing not always showing a CSF leak. So, what the heck do you do IF everything is normal BUT you have the ‘clinical’ symptoms of an CSF Leak??
Any advice would be helpful, I am honestly extremely frustrated at this point and I HONESTLY do not know how people deal with this for months OR years!!
SORRY for the long post and THANKS to anyone who might reply.
Cheers
Nener
After going to the ER 2x and them saying it was viral, they gave me IV fluids and sent me home.
I FINALLY got ahold of the pain doctor who did the ESI and he stated it was a Spinal Headache and performed a blood patch. The blood patch worked for about 30hrs and this unrelenting headache came back. When I wake up in the morning I don’t notice the headache until I stand up and start to try and do things, once all the symptoms have started I need to lay back down and usually after about 20-30mins the headache and symptoms are gone again, with the exception of the nausea & vomiting.
After continuous conversation with the Pain Doctor, I have begged him to try the blood patch again because I figure if it worked for a little while MAYBE I just didn’t rest enough and somehow screwed it up. I thought I FINALLY got him to agree on Tuesday, so I met up with him on Wednesday and he at that point said he was going to order a CT of my head and spine, those all came back normal so he decided against the blood patch and said he is going to order an MRI, discouraged and crying I asked him WHY he can’t just do the blood patch and God forbid if it doesn’t work then we go to the MRI. He still said no.
He was able to get me into the hospital for an urgent MRI 2 days later. Well, the MRI as well came back normal as I just found out. Now, the pain dr said he is going to consult with Neurology and he wants me to ‘hang in there’. He told me I could stop with the hydration and caffeine but continue with the Tylenol and Ibuprofen..
So, how long am I am going to have to continue to suffer? I cannot afford all this as I am unable to work due to the inability to stand up and do things for long periods of time without me feeling like my head and neck are going to
After reading A LOT up on the internet the last day and a half, I have read about testing not always showing a CSF leak. So, what the heck do you do IF everything is normal BUT you have the ‘clinical’ symptoms of an CSF Leak??
Any advice would be helpful, I am honestly extremely frustrated at this point and I HONESTLY do not know how people deal with this for months OR years!!
SORRY for the long post and THANKS to anyone who might reply.
Cheers
Nener
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