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Thread: OT: May Chit Chat

  1. #291
    Distinguished Community Member agate's Avatar
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    You might even have wi-fi without realizing it. That's what happened to me. I told the Internet installation guy at the time I signed up for CenturyLink that I had no wireless devices but found out much later that wi-fi was on there anyway. It seems to be automatically on there with many Internet providers.

    It did come in handy later on though, when I got the iPad because it's a wireless device, and I was already all set up for it.

    I take the iPad with me to appointments (very carefully, making sure I never let it out of my sight and never dropping it), and often there's a wi-fi password available at the medical providers I go to. I can get e-mail or be online for any other purpose with that wi-fi access, even while waiting in a doctor's office.

    I have heard that it's not the safest type of Internet access, and so I don't use it much. I can still turn the iPad on and play some games on it without the wi-fi access. It's one way to while away the time while waiting for a paratransit van. If there are magazines available, they're usually old or ones I don't want to look at.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  3. #292
    Distinguished Community Member Cherie's Avatar
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    We automatically have WiFi with our Verizon Internet. The router has both a hard wired and wireless signal. It is password protected and it is a long and strange password assigned by the company that is specific to our router/modem. Perhaps you need to put a password on yours if it does not have one?

    Agate,
    I do the same thing with my Kindle while waiting for appointments.
    However, it has nothing on it as far as documents or financial information or anything but books and games.

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  5. #293
    Distinguished Community Member Sunshine's Avatar
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    IVIG all day today.

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  7. #294
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    Good luck, Sunshine, I hope you get a good boost from it.

    Linda, are you still getting Rituxan?

    ANN
    There comes a time when silence is betrayal.- MLK

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  9. #295
    Distinguished Community Member Cherie's Avatar
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    I am beginning to feel like I need to do this again. But I cannot till after the middle of June.

    www.iConquerMS.org announced today that we are now affiliated with the Italian MS Society for the next 5 years to develop a world wide data base of patient reported outcomes related to MS, therapies and medications. Amsterdam MS Society today is meeting with our CEO to also join this movement and report what it is that we, people living with MS, feel is most important for researchers and the Medical Community to know from people living with this. If you want to help, go to www.iConquerMS.org and sign up as a member (free). Fill out surveys every 6 months on how your mS is affecting you and we will develop a database to help people with MS, researchers and physicians know how to approach therapies and treatments. I have been doing this every 6 months for nearly 4 years now. We are trying to show trends.

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  11. #296
    Distinguished Community Member Howie's Avatar
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    Agate, tomorrow, Friday the 1st, IS payday, isn't it?
    "A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."

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  13. #297
    Distinguished Community Member Sunshine's Avatar
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    Why cannot you do it for a couple of weeks Cherie?

    I love my IVIG nurses, but it’s sure hard sitting there 8 hours every two weeks. It’s helping though, so I soldier on.

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  15. #298
    Distinguished Community Member agate's Avatar
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    Howie, tomorrow the 1st ought to be payday because the 3rd is on Sunday.

    Rituxan was mentioned. I just ran across an abstract of an article about how the off-label use of Rituxan has increased dramatically in Sweden recently. It isn't very clearly written but it does sound dramatic:

    https://www.ncbi.nlm.nih.gov/pubmed/29797711
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  17. #299
    Distinguished Community Member Cherie's Avatar
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    Quote Originally Posted by Sunshine View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Why cannot you do it for a couple of weeks Cherie?

    I love my IVIG nurses, but it’s sure hard sitting there 8 hours every two weeks. It’s helping though, so I soldier on.
    I leave for 4 days tomorrow then am home for 4 before leaving for three days away. My doc does 2-3 days in a row when I need it. I have not found any benefit to a single dose when needed or even a monthly single dose.

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  19. #300
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    Cherie, I am confused. Are you talking about your Rituxan or are you also taking IVIg in addition?
    Virginia

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