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Thread: Going to Mayo in a few days

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Going to Mayo in a few days

    Therefore, I may not be here to read others posts and update threads until I get a chance. Should be back by Wednesday eve.

    Until then, keep reading and consider joining in a discussion. Itís anonymous and your data will not be sold to Cambridge Analytics.

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  3. #2
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    Good luck at Mayo dear. :)
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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    Distinguished Community Member Sunshine's Avatar
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    Thanks funnylegs. Made it to JAX. Let the torture begin. Tomorrow is an easy day. So far.

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    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Sunshine)))))) ~

    So glad you arrived safely. I'll be thinking of you and sending you lots of positive energy. I hope that nothing will be painful or difficult for you. Bless you!

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Distinguished Community Member Sunshine's Avatar
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    First day is over. The neuro has seen over 70 cases of SPS. One test today did the GAD65 bloodwork to see partly if Mayo labs find same abnormality as Quest has.

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  11. #6
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    Hope the test results reveal good news.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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  13. #7
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    Sunshine, I hope you are doing OK. I'm a bit worried.

    ANN
    There comes a time when silence is betrayal.- MLK

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    More worried. I am hoping that you are just adjusting to new meds or resting. Maybe feeling well and doing a little catch up.

    ANN
    There comes a time when silence is betrayal.- MLK

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  17. #9
    Distinguished Community Member Sunshine's Avatar
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    Quote Originally Posted by stillstANNding View Post
    This quote is hidden because you are ignoring this member. Show Quote
    More worried. I am hoping that you are just adjusting to new meds or resting. Maybe feeling well and doing a little catch up.

    ANN
    The trip to Mayo was exhausting and expensive and the eval will finish in June. I am underwhelmed so far.

    The neuro did some painful electric tests, and an expensive useless consult with a paraprofessional that Medicare won’t cover,

    The hard EMG is in two months. I have to be off muscle relaxants for it. I will talk to local neuro as I am not sure I should do that. The Mayo doc said if I go into withdrawal, by all means take the Baclofen. i.e, racing heart, profuse sweating, etc. GEESH. He said if I spasm. Just put up with it. Now these are not ordinary spasms. Way worse than childbirth.

    Online I see that the Mayo GAD65 is also abnormally high. Will be interesting to see his comment on it.

    They have you sign at most appts that you will pay if Medicare doesn’t, and that Medicare might not pay.but no one can tell you anything more other than the price if they don’t. If they don’t, I am already going to be dinged for 3K.

    I have another call into billing. No one seems to be able to give me a procedure code for it to check with Medicare.



    .
    Last edited by Sunshine; 04-07-2018 at 01:39 AM.

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  19. #10
    Distinguished Community Member Sunshine's Avatar
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    Updated. The billing people called and said the procedures will be covered except the paraprofessional hour long consult. Which is about $500: good work if you can get it.

    Mayo is a Provider on Medicare Part A, but not Part B. Thus, for the part B visits, Medicare sends me a check and then I pay Mayo.

    But, since they aren’t Medicare provider, the amount Medicare allows is 35% less than the charges. Supplementary insurance will pick it up only if you bought Plan F. Luckily I have Plan F.

    Let that be a warning to those who are in a similar boat.
    Last edited by Sunshine; 04-07-2018 at 01:47 AM.

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