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Thread: Woman with SPS putting on one-act play about it

  1. #1
    Distinguished Community Member agate's Avatar
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    Default Woman with SPS putting on one-act play about it

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Sunshine's Avatar
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    Wow! How did you find this article?! If her Stiff Person Syndrome is like so many if us, the excitement of each performance can bring intense pain.

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    Ohhh! I'd love to see this play! Yes I would imagine performing makes her tight as it does for me with spasticity but if you play a character with your own disability as I did here http://www.cripvideoproductions.com/...fendurance.php you tend to be more relaxed about the whole thing. Its much worse for disabled actors who are told to hide their disabilities when they perform.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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    Distinguished Community Member agate's Avatar
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    A while back I mentioned setting up a Google Alert for "stiff-person syndrome." I did that and have been getting occasional e-mails about it. (I've had an alert set up for MS/Tysabri/PML and for Ocrevus for a while, and some interesting items do turn up.) You could probably set up quite a few of these alerts if you wanted specific information about aspects of the disorder or suggested treatments for it or whatever.

    Today's e-mail brought links to a couple of reviews of this woman's show:

    http://www.laduenews.com/arts-and-cu...d34c4f011.html

    https://www.broadwayworld.com/austin...-Only-20180329

    Anyone who has Google can subscribe to Google Alerts on any topic. You just name the topic and you'll start getting e-mails about it. I was afraid I'd be deluged with e-mails but actually there are only a couple of them each week--and I now have 3 topics going.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member agate's Avatar
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    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
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