Woman with SPS putting on one-act play about it

[agate]

A woman with SPS is doing a one-act play about it, called "Stiff":

http://www.stltoday.com/entertainment/arts-and-theatre/reviews/stiff-explores-life-with-the-surprise-of-disability/article_5ff14b20-a823-5efc-b9c3-72127a12e4d0.html

[Sunshine]

Wow! How did you find this article?! If her Stiff Person Syndrome is like so many if us, the excitement of each performance can bring intense pain.

[funnylegs4]

Ohhh! I'd love to see this play! Yes I would imagine performing makes her tight as it does for me with spasticity but if you play a character with your own disability as I did here http://www.cripvideoproductions.com/...fendurance.php you tend to be more relaxed about the whole thing. Its much worse for disabled actors who are told to hide their disabilities when they perform.

[agate]

A while back I mentioned setting up a Google Alert for "stiff-person syndrome." I did that and have been getting occasional e-mails about it. (I've had an alert set up for MS/Tysabri/PML and for Ocrevus for a while, and some interesting items do turn up.) You could probably set up quite a few of these alerts if you wanted specific information about aspects of the disorder or suggested treatments for it or whatever.

Today's e-mail brought links to a couple of reviews of this woman's show:

http://www.laduenews.com/arts-and-cu...d34c4f011.html

https://www.broadwayworld.com/austin...-Only-20180329

Anyone who has Google can subscribe to Google Alerts on any topic. You just name the topic and you'll start getting e-mails about it. I was afraid I'd be deluged with e-mails but actually there are only a couple of them each week--and I now have 3 topics going.