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Thread: Kathleen

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    Default Kathleen

    Today we are heading to Shriner's Hospital. The Dr.s there decided not to do hip surgery right now as she may not have the strength to clear her foot if they straighten it. She uses the rotation to clear her foot when walking as apposed to lifting it. What they will be doing is lengthening her tendon in the calf. We have pre op today Kathleen and I will stay and surgery is in the AM. She will have a short leg cast for 6 weeks but it will be a walking cast. Back to sponge baths and hair washing over a bucket. I will keep you posted on her progress. Her biggest question will I get to see blood. She thinks seeing blood is pretty cool LOL
    Mary Grace

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    ((((((Mary Grace & Kathleen)))))) ~

    Many prayers on the way for a successful surgery and a rapid recovery. I hope that the bathing and hair washing will be easy for both of you. I had to chuckle that Kathleen wants to see blood, because that's "pretty cool." Bless her!!

    Looking forward to your progress reports.

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Prayers for a successful surgery! I had a similar surgery. It was a pretty easy recovery. Good I'm not the only one who liked seeing blood. I watched my own blood come out during blood tests LOL. Yes I'm weird LOL.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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    Thanks Rose and funnylegs. She too wathces the blood go through when she gets blood drawn. Her only fear is the bandaid she hates bandaids.
    We met with the dr. and PT yesterday and all looks lie it will go smooth. The trick will be getting her confident to walk with the cast. They may also release the heel cord a little more if needed. They will cast her for a new AFO right in the OR. We slept in the family room last night and played games, had dinner together and watched TV. Avery nice quiet cuddly night together. I'll keep you posted, all the prayers are greatly appreciated.
    Mary Grace

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    ((((((Mary Grace and Kathleen)))))) ~

    You've been in my thoughts and prayers all day. I pray that right now you are sleeping and resting peacefully. I'm sure you're exhausted.

    How wonderful that you two enjoyed a night of fun and cuddling. So sweet.

    I look forward to your updates and will continue to send healing, positive energy your way.

    Bless You!!

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Kathleen's surgery went as planned. She went into surgery smiling and woke up smiling. She slept comfortably and was ever so happy to eat breakfast!!! Kathleen has a short leg cast on (she picked dark blue) I'm shocked she didn't pick black because it was on the list and is her favorite color. She also has to wear a soft brace up to her thigh to keep everything stretched. She wears that as tolerated, so we'll see how well she tolerates, so far she has had no issues. We worked yesterday with PT in the hospital Walking and did steps. She's using a walker to help her balance. We had a bad snow storm in the northeast so schools were closed in Springfield and at home. Roads cleared well enough for my husband to come pick us up late afternoon. We were home by 6pm. She has been working hard in a workbook over the past few days which has been fun for us to do together. Kind of a word puzzle book. It kept us busy.

    I can't say enough about Shriner's and the care they give to the family and patient. Everyone from the Child Life specialist to the dr. While waiting for surgery the child doesn't sit in a surgery waiting room they get to stay in a playroom until a short time before. Her Dr came to see here 3 times the day of surgery and 2 times the next day. Made sure we knew we can stay until we're both comfortable going home (even if it was the weather that interfered with travel). Pain has been managed with Tylenol. She got to see blood but not until they removed her IV. Iv'e never seen it bleed like it did it kind of squirted right out when they pulled it. She thought that was pretty COOL! I'll try and get a couple pictures up Thank you all for the prayers and positive thoughts.
    Mary Grace

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    Quote Originally Posted by mg12061 View Post
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    Kathleen's surgery went as planned. She went into surgery smiling and woke up smiling. She slept comfortably and was ever so happy to eat breakfast!!! Kathleen has a short leg cast on (she picked dark blue) I'm shocked she didn't pick black because it was on the list and is her favorite color. She also has to wear a soft brace up to her thigh to keep everything stretched. She wears that as tolerated, so we'll see how well she tolerates, so far she has had no issues. We worked yesterday with PT in the hospital Walking and did steps. She's using a walker to help her balance. We had a bad snow storm in the northeast so schools were closed in Springfield and at home. Roads cleared well enough for my husband to come pick us up late afternoon. We were home by 6pm. She has been working hard in a workbook over the past few days which has been fun for us to do together. Kind of a word puzzle book. It kept us busy.

    I can't say enough about Shriner's and the care they give to the family and patient. Everyone from the Child Life specialist to the dr. While waiting for surgery the child doesn't sit in a surgery waiting room they get to stay in a playroom until a short time before. Her Dr came to see here 3 times the day of surgery and 2 times the next day. Made sure we knew we can stay until we're both comfortable going home (even if it was the weather that interfered with travel). Pain has been managed with Tylenol. She got to see blood but not until they removed her IV. Iv'e never seen it bleed like it did it kind of squirted right out when they pulled it. She thought that was pretty COOL! I'll try and get a couple pictures up Thank you all for the prayers and positive thoughts.
    Mary Grace
    So glad surgery went as planned. Not sure why the IV would bleed. I have never seen that. She must have gotten a huge kick out of that.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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    Funnylegs, I've never seen one bleed like that either. But Kathleen takes aspirin (she went off it for a week for surgery but went right back on) so maybe it was a combination of a really good vein and the aspirin. Anyway glad she got to see blood she loved it!
    Mary Grace

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    ((((((Mary Grace & Kathleen)))))) ~

    Great news that surgery went well and you're home already! How wonderful that Shriner's provides such excellent care, as you've mentioned before. And the icing on the cake ~ Kathleen got to see spurting blood! I'm with you that the aspirin was probably a reason for that, even though she'd been off of it previously.

    Continuing healing prayers for a rapid and complete recovery.

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Quote Originally Posted by mg12061 View Post
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    Funnylegs, I've never seen one bleed like that either. But Kathleen takes aspirin (she went off it for a week for surgery but went right back on) so maybe it was a combination of a really good vein and the aspirin. Anyway glad she got to see blood she loved it!
    Mary Grace
    Is the aspirin to help prevent more strokes?? Anyway yes aspirin or anything like that which thins the blood could be a source of the bleed. Glad she enjoyed it! I'm also glad she can walk in her cast since that makes it easier. Prayers for recovery.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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