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Thread: Ocrevous scheduled Yay!!!

  1. #1
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    Default Ocrevous scheduled Yay!!!

    Almost 6 months have gone by.
    Scheduled for 1/23. Can’t wait!!!
    Whatever benefit I got from first infusions didn’t last more than a few weeks.
    Has anyone done 2nd one at six months?
    How long did it take, how did full dose feel?
    Be the person your dog thinks you are

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  3. #2
    Distinguished Community Member BBS1951's Avatar
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    Good luck and keep us posted! Hoping this coming infusion does the trick

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    Distinguished Community Member agate's Avatar
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    I seem to recall that Peg was about to have the second infusion but there was a possible glitch in the arrangement. Not sure how that turned out. Peg?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Pegakafarmgirl's Avatar
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    Hi,, its in the works,, I have been adment about being done at my hospital, and they want it done in Des Moines,, so the people here at my hospital told them it will be done here,,,, its time for it,,.... I think I am going to be looking for another neuro, if this makes me go to DM,,
    frustrating
    " Don't outsmart your common sense"

    Peg

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  9. #5

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    I have not heard about this. My neurologist has a side office where infusionsbare performed
    But I have not needed it yet. Anyway I assumed it was like liquid Prednisone

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  11. #6
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by petpuppy View Post
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    I have not heard about this. My neurologist has a side office where infusionsbare performed
    But I have not needed it yet. Anyway I assumed it was like liquid Prednisone
    Ocrevus/rituxan and other chemo meds used for ms are usually give at an infusion center that is fully staffed with experienced nurses in a place where doctors are around to get immediate attention. I have had prednisone infused in my home by a visiting nurse. I have only had a serious reaction once in the 17 years I have been doing chemo for MS but I was immediately surrounded by many professionals.

    The standard dosing for Ocrevus/rituxan is to get 2 infusions every 6 months. The two infusions are separated by two weeks. After them you are set for 6 months.
    Linda~~~~

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  13. #7
    Distinguished Community Member agate's Avatar
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    Linda, I don't know about Rituxan but for Ocrevus isn't it 2 infusions 2 weeks apart at first, then 1 infusion every 6 months after that? I got this from the Ocrevus Webpage:

    Administer OCREVUS under the close supervision of an experienced healthcare professional with access to appropriate medical support to manage severe reactions such as serious infusion reactions.
    • Initial dose: 300 mg intravenous infusion, followed two weeks later by a second 300 mg intravenous infusion.
    • Subsequent doses: single 600 mg intravenous infusion every 6 months.
    • Observe the patient for at least one hour after the completion of the infusion.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    My Rituxan dosing has switched to one infusion every six months. It used to be a set of two infusions every six months.
    Last edited by Ikoiko; 01-12-2018 at 11:52 AM.

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  17. #9
    Distinguished Community Member BBS1951's Avatar
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    Quote Originally Posted by Ikoiko View Post
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    My Rituxan dosing has switched to one infusion every six months.
    Hey Ikoiko! How are you doing on Rituxan?

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  19. #10
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    I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.
    Last edited by Ikoiko; 01-12-2018 at 11:57 AM.

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