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Thread: Ocrevous scheduled Yay!!!

  1. #61
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Virginia View Post
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    I was thinking of asking Doctor about it when I see him next month, but sounds very complicated. Maybe if I got into it I might feel differently.

    I am going to ask if he thinks I can tolerate Rituxan.
    Virginia,
    Rituxan has almost no side effects for most people who take it. It is one of the safest drugs available to us. Really, it is not complicated. Infusion centers have very competent nurses. Don’t worry.

    Some of us took IVIg and that is what we were talking about in terms of infusion rates. Even then, it is a matter of turning the dial up or down....again, don’t worry.
    Last edited by Lazarus; 06-17-2018 at 03:01 PM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  3. #62
    Distinguished Community Member Cherie's Avatar
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    Genentech announced a couple of days ago that they now have 4 cases of PML with Ocrevus. All were on Tysabri and JCV+ and became symptomatic after first dose of ocrelizumab . Here is a link to the announcement. https://www.ocrelizumabinfo.com/cont...phalopathy.pdf

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  5. #63
    Distinguished Community Member agate's Avatar
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    For some reason that link isn't cooperating but the link in the other thread is OK. Here it is, and it's to a .pdf file.

    https://www.ocrelizumabinfo.com/cont...phalopathy.pdf
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #64
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    Scheduled for July 23. Fingers crossed it does something this time.
    Be the person your dog thinks you are

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  9. #65
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    Good luck, Ssusan! I hope you get an energy boost that lasts.

    ANN
    There comes a time when silence is betrayal.- MLK

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  11. #66
    Distinguished Community Member Pegakafarmgirl's Avatar
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    My infusion is next Tuesday the 31st,, at 7 am,, here at Unity Point Fort Dodge,, so glad I found this neuro,, then a busy week a head of me,, with company/family reunion/and a wedding,,but I'll handle it..
    " Don't outsmart your common sense"

    Peg

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  13. #67
    Distinguished Community Member agate's Avatar
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    Keeping fingers crossed for you, Peg. With a schedule like yours for that week, I'd be chickening out on some of those public appearances. I admire those who soldier on.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #68
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    Peg, what a week coming up. Hope you haven't volunteered to cook. Good luck with your Ocrevus infusion. I can't remember if you ever got to take the first two half doses and this is your first full one or if you never could get it scheduled at all. Hope you get a good boost of energy and some good lasting effects.
    Virginia

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  17. #69
    Distinguished Community Member agate's Avatar
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    ssusan must have had an infusion yesterday. Hope that went well.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  19. #70
    Distinguished Community Member Sunshine's Avatar
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    Peg, good luck. I don’t know how you do it!!

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