Page 2 of 4 FirstFirst 1234 LastLast
Results 11 to 20 of 38

Thread: Ocrevous scheduled Yay!!!

  1. #11
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    7,422
    Blog Entries
    11

    Default

    Quote Originally Posted by Ikoiko View Post
    This quote is hidden because you are ignoring this member. Show Quote
    I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.
    The stable MRIs are probably taken as a sign that the Rituxan is working even if you're not feeling any better.

    When I was on Copaxone, I'd had a baseline MRI and then I had a later one to see how I was doing on the Copaxone. When no new lesions showed up, the neuro said that that indicated that the Copaxone was working. I hadn't noticed any improvement in my symptoms or in how I felt in general.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  2. The following 5 users say "thanks"


  3. #12
    Community Member
    Join Date
    Dec 2007
    Location
    RRMS
    Posts
    25

    Default

    The great thing about Rituxan, besides its efficacy, is no side effects.

  4. The following 5 users say "thanks"


  5. #13
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    W. Mass
    Posts
    158

    Default

    Peg, I had to get a second neurologist who Has prívleges at hospitals in my region

  6. The following 6 users say "thanks"


  7. #14
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    W. Mass
    Posts
    158

    Default

    Peg, I had to find a neurologist in our region of Massachusetts who has privileges at local hospitals. It took calling a lot of offices to find somebody. It is very worth it, so I don’t have to travel an hour and a half.

  8. The following 6 users say "thanks"


  9. #15
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,174

    Default

    Quote Originally Posted by Ikoiko View Post
    This quote is hidden because you are ignoring this member. Show Quote
    I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I did get shingles a year ago, which I think was due to being immunosuppressed on Rituxan. I am terrified of getting it again.
    There is a new more effective vaccine called Shingrix. The CDC rec it even if you had the older one already.

  10. The following 6 users say "thanks"


  11. #16
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    1,180

    Default

    Yes Agate. That is the schedule and I think it is what I wrote in my response above.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  12. The following 5 users say "thanks"


  13. #17
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    1,180

    Default

    Quote Originally Posted by agate View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Linda, I don't know about Rituxan but for Ocrevus isn't it 2 infusions 2 weeks apart at first, then 1 infusion every 6 months after that? I got this from the Ocrevus Webpage:
    Yes Agate, that is the standard dosing schedule that nearly everyone follows.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  14. The following 5 users say "thanks"


  15. #18
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    1,180

    Default Have the upped the dose of the one infusion?

    Quote Originally Posted by Ikoiko View Post
    This quote is hidden because you are ignoring this member. Show Quote
    My Rituxan dosing has switched to one infusion every six months. It used to be a set of two infusions every six months.
    Intriguing. Do you know the dose you get? Can you explain why this change was made? Interesting.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  16. The following 6 users say "thanks"


  17. #19
    Community Member
    Join Date
    Dec 2007
    Location
    RRMS
    Posts
    25

    Default

    I see you are in MA. I go to Beth Israel in Boston. I get 1000mg in one dose instead of splitting it into two 500mg doses. My neuro said that there is evidence that it works better this way.

  18. The following 7 users say "thanks"


  19. #20
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    1,180

    Default

    Quote Originally Posted by Ikoiko View Post
    This quote is hidden because you are ignoring this member. Show Quote
    I see you are in MA. I go to Beth Israel in Boston. I get 1000mg in one dose instead of splitting it into two 500mg doses. My neuro said that there is evidence that it works better this way.
    This is really interesting to me. I have been on rituxan for about 4 years. Rituxan and Ocrevus are the same and I have been wondering about asking several dosing questions. Can you tell me who your Boston doc is? I am in western MA. Friends of mine go to UMass Worcester.

    Thanks for any info. You have

    Did you ask what your doc meant by “works better”. I have been wondering if people ever get more than the amount received in the standard dosage protocol. Higher dosing or more frequent dosing...?? That is my focus right now.
    Last edited by Lazarus; 01-17-2018 at 04:51 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  20. The following 6 users say "thanks"


Page 2 of 4 FirstFirst 1234 LastLast

Similar Threads

  1. Transmissible Spongiform Encephalopathy Advisory Committee TSEAC MEETING SCHEDULED
    By flatfish in forum Creutzfeldt Jakobs Disease (CJD)
    Replies: 1
    Last Post: 04-30-2015, 06:02 AM
  2. Extended scheduled down time
    By Mike Weins in forum BrainTalk's feedback forum
    Replies: 3
    Last Post: 09-19-2012, 03:20 PM
  3. Epilepsy Surgery Scheduled for Jan 25th Denied today!
    By tigerchef1969 in forum Epilepsy
    Replies: 7
    Last Post: 12-22-2011, 06:11 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.