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Thread: Stiff Person Check In

  1. #161
    Distinguished Community Member Sunshine's Avatar
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    Infusion went well. Took Ativan at 8 am and at 130 a.m.

    At 4 phd my foot was smapsiming but not overwhelming.

    Discharged to DH. In te aback of th car, I seethed out and asked him to insert the 1.2 mm Valium in the recipe.

    So far so good.

  2. #162
    Distinguished Community Member Sunshine's Avatar
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    After IVIG ankle spasm— tried a few maneuvers. worked find. The rec discharge and she if nay owrlse with the atest efface.

  3. #163
    Distinguished Community Member Sunshine's Avatar
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    As I left the IVIG building, I had a terrific ankle twist spasm. Even though had Ativan at 1:30 pm that day for the IVIG, and had it also at 8am. It settled down in a few minutes. Got into car with DH and it greatly worsened. Did Rectal Valium gel and it stopped it.

    Then, this morning,had a bad spasm at @2am, unable to walk. settled down in 5 minutes. Then at 5 am very aggressive left leg spasm: unable to walk...Took Ativan. It worked in 20 minutes.

    I have put email out to doc about this morning. Had already told him about yesterday. I am thinking it was payback for forgetting my 2:30am 30mg Baclofen dose early yesterday morning...still could be...Yestrday before these crippling spasms, He Had told me to stay the course, and not take the missed dose...

    Scared. No drive today, no swim today, just lay low until I have a path. He gets back pretty fast to me.

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  5. #164
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    I hope that today is better, Sunshine.

    ANN
    There comes a time when silence is betrayal.- MLK

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  7. #165
    Distinguished Community Member Sunshine's Avatar
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    Thanks ANN.

    I swam 1/4 mile in 15 minutes. Still don’ttrust Legs after those massive spasms Mon-Tues.

    My legs still do not feel right since those IVIG spasms that night. They are tight, painful.

  8. #166
    Distinguished Community Member Sunshine's Avatar
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    Getting ready for hurricane season. Will have to be sure to have a couple weeks worth at least, of all meds.

    Starting to stockpile food sources. Have a hotplate, toaster oven, rice maker, water heater maker to plug into generator with loss of power.

    Its overwhelming. What used to be done in my sleep is cognitively and physically overwhelming.

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