Page 7 of 10 FirstFirst ... 2345678910 LastLast
Results 61 to 70 of 91

Thread: Stiff Person Check In

  1. #61
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    The Baclofen is dehydrating my skin, especially hands and oral cavity. Will see doc to discuss what can be done if anything.

  2. #62
    New Community Member
    Join Date
    Jun 2018
    Location
    PA
    Posts
    1

    Default

    hi i am new here hoping someone can help. I have sps was diagnosed a year ago and right now am getting second round of plasma thesaurus theapy. The fist time i had it, it didnt even last for 6 month and this time my numbers are twice as high as fist time i am scared and need help any help.

  3. The following 2 users say "thanks"


  4. #63
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    Quote Originally Posted by dee27 View Post
    This quote is hidden because you are ignoring this member. Show Quote
    hi i am new here hoping someone can help. I have sps was diagnosed a year ago and right now am getting second round of plasma thesaurus theapy. The fist time i had it, it didnt even last for 6 month and this time my numbers are twice as high as fist time i am scared and need help any help.
    Hi dee, and welcome!
    What does your neurologist think?

    And by numbers, what numbers are you referring to? The GAD65?
    How do you feel on this second round. Are you getting any symptom relief?

    This disease and it’s treatment are so hard scary and demoralizing for sure.
    Last edited by Sunshine; 06-05-2018 at 10:18 AM.

  5. The following user says "thanks"


  6. #64
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    IVIG all day today.

  7. The following user says "thanks"


  8. #65
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    I hurt my back last Oct lifting a wheelchair.

    I began to try chiropractic care in Feb. it helps immensely, and then slips back within two days, it’s holdong longer than originally though.

    I am suspicious that the muscle stiffening from SPS is pulling the back and sacral joint back out. The chiropractor seems to feel its unlikely but that it’s possible, but I hope it eventually resolves.

  9. #66
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    I read on Facebook SPS website that the woman was told for 7 years she had a conversion disorder (meaning sochhokogicisl cause of her illness, that the spasms were due to unresolved psych issue)...turns out it was SPS.

    There are too many lazy docs who just blame the patient for their illness. Usually they say “stress”...

  10. The following user says "thanks"


  11. #67
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    IVIG all day long today.

  12. #68
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    In creating a handicap accessible house, so many details to think about. Building an accessible pool as water based activity is only aerobic activity that’s doable. The public pool has accessibility issues.

    This pool is steps from the living room. Literally. Today will see if I can bend my body to get under lane divider.

    Such a weird debilitating illness. Still hard to believe it’s really happening to me.

  13. The following user says "thanks"


  14. #69
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    4,277

    Default

    I had one of those creepy foot and ankle twists at 3 a.m.It eased up within a minute. But the whole time, I a, wondering whether it will ease up, spread to the toes and legs .....

    I am sure others here with SPS can relate to that.

  15. The following user says "thanks"


  16. #70
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    3,224

    Default

    Sorry to hear about the ankle twist, Sunshine. Can you relate it to anything you do, don’t do or a med that you take or skip? Any pattern?

    ANN
    There comes a time when silence is betrayal.- MLK

  17. The following user says "thanks"


Page 7 of 10 FirstFirst ... 2345678910 LastLast

Similar Threads

  1. Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 6
    Last Post: 02-06-2018, 03:50 AM
  2. Stiff Person Syndrome
    By Sunshine in forum Multiple Sclerosis
    Replies: 4
    Last Post: 01-07-2018, 04:58 PM
  3. Tell about Your Stiff person challenges
    By Sunshine in forum Stiff Person Syndrome
    Replies: 0
    Last Post: 01-06-2018, 02:54 PM
  4. Causes of Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 2
    Last Post: 01-06-2018, 01:47 PM
  5. Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 0
    Last Post: 01-06-2018, 06:03 AM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.