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Thread: Stiff Person Check In

  1. #71
    Distinguished Community Member Sunshine's Avatar
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    No, I can’t tie it to something.


    I woke up at 1 a.m. today again with ankle spasms pulling my feet sideways. Oof. Took Tizanidine.
    By breakfast I was okay. So, with trepidation, I went surfing

    It was a repeat of yesterday. I can see my body healing somewhat— my pop up is better, and my balance on the board is better. I was able to take a couple of steps on the board too. I got manywaves , by resting every 10 to 15minites to settle down the muscle tension.

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  3. #72
    Distinguished Community Member Sunshine's Avatar
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    I am doing an all Day IVIG tomorrow. So, I won’t be updating on this forum.

    We have readers here. I do wish some might post! They likely have valuable things to say !

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  5. #73
    Distinguished Community Member Sunshine's Avatar
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    Yesterday, I was joking and laughing with my husband and feeling like I used to feel. It was nice to have that carefree feeling back even if it was for a short time. Maybe the stiff person syndrome is continuing to improve…

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  7. #74
    Distinguished Community Member Sunshine's Avatar
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    I am doing an all Day IVIG tomorrow. So, I wonít be updating on this forum.

    We have readers here. I do wish some might post! They likely have valuable things to say !

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  9. #75
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    My youngest is in town for the weekend. We are having a good visit. Low key, SPS friendly weekend. Keeping noise manageable.

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  11. #76
    Distinguished Community Member Sunshine's Avatar
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    Today was the best day since I got SPS! My background pain went from 4-6 down to 0-2!

    And, the stiffness reduced about 75%

    Yesterday I got my second Shingrix shot. And it made me feel feverish.... Might that be pertinent? Might my immune system be tied up making antibodies to Shingles, and thus not attacking my nervous system?

    Let’s see how tomorrow goes.... but at least I had today!

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  13. #77
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    IVIG all day today. Need the recharge...

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  15. #78
    Distinguished Community Member Sunshine's Avatar
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    The gains are slipping away. Now my shins and ankles feel fractured with extended standing. Boo. That Shingrix gain slowly slipped away over four days, and then continued to recede back to early to mid April level.
    Last edited by Sunshine; 08-12-2018 at 11:18 AM.

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  17. #79
    Distinguished Community Member Sunshine's Avatar
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    Still no gains. Yesterday was high neuropathy. When the pain is higher, I get so very lonely and sad, short tempered. I chant I choose to be happy and it helps lift my mood half the time.

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  19. #80
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    IVIG all day tomorrow, Wednesday.

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