The Baclofen is dehydrating my skin, especially hands and oral cavity. Will see doc to discuss what can be done if anything.
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Originally posted by dee27 View Posthi i am new here hoping someone can help. I have sps was diagnosed a year ago and right now am getting second round of plasma thesaurus theapy. The fist time i had it, it didnt even last for 6 month and this time my numbers are twice as high as fist time i am scared and need help any help.
What does your neurologist think?
And by numbers, what numbers are you referring to? The GAD65?
How do you feel on this second round. Are you getting any symptom relief?
This disease and it’s treatment are so hard scary and demoralizing for sure.Last edited by Sunshine; 06-05-2018, 10:18 AM.
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I hurt my back last Oct lifting a wheelchair.
I began to try chiropractic care in Feb. it helps immensely, and then slips back within two days, it’s holdong longer than originally though.
I am suspicious that the muscle stiffening from SPS is pulling the back and sacral joint back out. The chiropractor seems to feel its unlikely but that it’s possible, but I hope it eventually resolves.
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I read on Facebook SPS website that the woman was told for 7 years she had a conversion disorder (meaning sochhokogicisl cause of her illness, that the spasms were due to unresolved psych issue)...turns out it was SPS.
There are too many lazy docs who just blame the patient for their illness. Usually they say “stress”...
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In creating a handicap accessible house, so many details to think about. Building an accessible pool as water based activity is only aerobic activity that’s doable. The public pool has accessibility issues.
This pool is steps from the living room. Literally. Today will see if I can bend my body to get under lane divider.
Such a weird debilitating illness. Still hard to believe it’s really happening to me.
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No, I can’t tie it to something.
I woke up at 1 a.m. today again with ankle spasms pulling my feet sideways. Oof. Took Tizanidine.
By breakfast I was okay. So, with trepidation, I went surfing
It was a repeat of yesterday. I can see my body healing somewhat— my pop up is better, and my balance on the board is better. I was able to take a couple of steps on the board too. I got manywaves , by resting every 10 to 15minites to settle down the muscle tension.
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