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Thread: Stiff Person Check In

  1. #171
    Distinguished Community Member Sunshine's Avatar
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    Still feel like a UTI— will repeat Urine Cluture tomorrow.

  2. #172
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    Love the summer: town empties out of all the snowbirds, no wait ANYWHERE— Lab was completely empty, no wait. Dropped off sample for Urine Culture to r/0 UTI. Still no grab bars on the wall—WTH? Had to leave the door unlocked in case I needed help gettin up—GEESH.

  3. #173
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    Painful spasm last night lateral part of lower leg, settled down with pressure, but pelvic pain rest of night. Waiting for UTI culture results. Horrible night sweat with dizziness hour before the spasm.

    GEESH.

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  5. #174
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    Brain MRI was today and I was pleased that my legs didnt spasm. They reported in and I just told the muscles to settle down...they listened to me for some reason or other.

    The techs were great about not touching my legs...

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  7. #175
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    No swim today: had to go to doc appointment early...

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  9. #176
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    I took an Ativan, planned today at 10am so as to get a break from the stiffening pain. It is so helpful.I am moving better, no need for R2D2, using rollator for safety only. Was able to cook a meal — a breeze this time. And enjoyed the day better. It will wear off around bedtime.

  10. #177
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    IVIG all day today...\

    Back now from an uneventful day. Happy to say I am walking better, no pain, no pain in back or in legs, no arm pain. I do have 3 ativans in me starting at 8 am, 1pm and 3 pm. THis will carry me through the evening. ...i skipped he MMJ as it was unnecessary.

    I can skip., well, awakwardly. Bu I candef walk capably without any assistance at all. And walk and walk and walk.

    Love this...Wihs I could do Ativan every day— BT one develops tolerance on it and then it stops working, so, that is not allowed for good reason.

    Even the chiropractor pain is gone....its a freaking miracle. The urinating is normal too
    Last edited by Sunshine; 06-12-2019 at 02:17 PM.

  11. #178
    Distinguished Community Member Sunshine's Avatar
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    IVIG went well. No spasms. The 3 ativans also got rid of all my pain and I walked nearly normally.

    Today, the day after IVIG I am still walking better,walk 60 steps without dying to sit down.after swimming too
    Last edited by Sunshine; 06-13-2019 at 05:27 AM.

  12. #179
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    So, I tried to reduce Baclofen to 80mg daily from 85mg and all day the legs were stiffened. I don’t know if its affiliated with the reduction of Baclofen. I liked the less side effects, not dizzy, better cognition/

    Back to 85mg today. If my legs are less stiff, then I have the answer.
    I hate SPS, don’t you?

  13. #180
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    Today was an early morning appt with GI who manages the side effects of the crippling muscle relaxers, so I skipped swimming

    Tomorrow is an early morning appointment with the Urologist who may be recommending self cath— hope not....

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