How do you treat your Stiff Person Syndrome. Does it help

[Sunshine]

I take high doses of oral Baclofen and Tizanidine spread throughout the day. It controls spasms. I get only fleeting spasms now. I use Medical Marijuana and it reduces stiffening, but not spasms.

I also do IVIG infusions, which also helps the MS and the immunoglobulin deficiency.

I am hoping others will report their treatment, side effects, how well it works.

Med schedule is so complex, I got phone alarms chiming many times throughout the day.