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Thread: Stiff Person Syndrome and Exercise

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Stiff Person Syndrome and Exercise

    As an athletic person, Stiff Person Syndrome hits me hard.

    Not only are sports like swimming, surfing, and walking fun, they keep wellness under control. Even with MS Inwas able to enjoy physical activity.

    Enter Stiff Person Syndrome:

    Walking more than a couple of minutes is out of the question. Standing more than a minute is painful and dangerous.

    Water is so far the only way for me to exercise and elevate the heart rate. And Ali now only swim 16 minutes a few times a week, rather than an hour 7 days a week. Surfing 3x week for 3 hours per, is now only

    And the whole time, the Stiff Person Syndrome creates muscle stiffening in legs, making me worry if a full blown spasm will rear up.


    Lifting 6lb weights is okay from seated position . But it doesn’t elevate heart rate.

    I am curious what others with Stiff Person manage for activity.

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  3. #2
    Distinguished Community Member Sunshine's Avatar
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    This is still a big problem. Searching for solutions and wonder what others have found.

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  5. #3
    Distinguished Community Member Sunshine's Avatar
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    My reading and talking with a man with Stiff Person Syndrome indicates this is a pervasive problem. Exercise triggers stiffening and spasms. Even modest exercise.

    The lack of exercise and walking, then, trigger other medical problems; this domino effect is difficult and demoralizing.

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