Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: Stiff Person Syndrome and Exercise

  1. #1
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default Stiff Person Syndrome and Exercise

    As an athletic person, Stiff Person Syndrome hits me hard.

    Not only are sports like swimming, surfing, and walking fun, they keep wellness under control. Even with MS Inwas able to enjoy physical activity.

    Enter Stiff Person Syndrome:

    Walking more than a couple of minutes is out of the question. Standing more than a minute is painful and dangerous.

    Water is so far the only way for me to exercise and elevate the heart rate. And Ali now only swim 16 minutes a few times a week, rather than an hour 7 days a week. Surfing 3x week for 3 hours per, is now only

    And the whole time, the Stiff Person Syndrome creates muscle stiffening in legs, making me worry if a full blown spasm will rear up.


    Lifting 6lb weights is okay from seated position . But it doesnít elevate heart rate.

    I am curious what others with Stiff Person manage for activity.

  2. The following user says "thanks"


  3. #2
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    This is still a big problem. Searching for solutions and wonder what others have found.

  4. The following 3 users say "thanks"


  5. #3
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    My reading and talking with a man with Stiff Person Syndrome indicates this is a pervasive problem. Exercise triggers stiffening and spasms. Even modest exercise.

    The lack of exercise and walking, then, trigger other medical problems; this domino effect is difficult and demoralizing.

  6. The following 2 users say "thanks"


  7. #4
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    I try to exercise when I have more Tizanidine on board re timing of exercise and dose. Also, try to exercise before 1 pm. Any later guarantees spasms.

  8. The following 3 users say "thanks"


  9. #5
    Distinguished Community Member
    Join Date
    Jan 2009
    Posts
    1,380
    Blog Entries
    20

    Default

    6lb weights are good for lean muscle. Lean muscle will be less spastic. Swimming is also great. In CP exercise lessens spastic activity after a bit of initial tensing. Cerebral Palsy is different in that sense.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

  10. The following user says "thanks"


  11. #6
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    Thanks funnylegs.

    I reached my target of ten pound weights for arms.

    Since I temporarily, hopefully, canít swim or surf, am out of luck re aerobic exercise for now.


    exercise is a trigger for SPS spasms, so itís tricky. Finding ways to stretch is good. But aerobic activity is dicey. Itís important to do the exercise early day, and time it when the muscle relaxants are on board.

  12. #7
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    Dr. Newsome recommends moving in a warm pool as cold is a trigger for symptoms.

  13. The following 2 users say "thanks"


  14. #8
    Distinguished Community Member Sunshine's Avatar
    Join Date
    Oct 2006
    Posts
    3,345

    Default

    But I did lift free weights today. And I stood much longer, walked more competently around the house today and yesterday due to IVIG this week. It lasts the better part of the week and then the problems slowly creep back up.

    I am noticing the muscle in my left for arm from the side is still tight like when you lift away. The muscle has not relaxed yet I hate that feeling is the first time I noticed in my arms. It is probably stiff person syndrome acting up.

  15. The following 2 users say "thanks"


  16. #9
    New Community Member
    Join Date
    Apr 2018
    Location
    530 Lytton Ave, 2nd Floor Palo Alto, California 94301
    Posts
    7

    Default

    I think so, such a critical problem. Though I didn't find any solution. :(

  17. The following 2 users say "thanks"


  18. #10
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    2,764

    Default

    Welcome Galloway, thank you for posting. :-)

    ANN
    There comes a time when silence is betrayal.- MLK

  19. The following 2 users say "thanks"


Page 1 of 2 12 LastLast

Similar Threads

  1. Physical Therapy experiences and Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 5
    Last Post: 02-19-2018, 03:22 PM
  2. Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 6
    Last Post: 02-06-2018, 03:50 AM
  3. Stiff Person Syndrome
    By Sunshine in forum Multiple Sclerosis
    Replies: 4
    Last Post: 01-07-2018, 04:58 PM
  4. Rituxan and Stiff Person Syndrome
    By Sunshine in forum Stiff Person Syndrome
    Replies: 1
    Last Post: 01-06-2018, 02:41 PM
  5. Exercise pedaller
    By agate in forum Multiple Sclerosis
    Replies: 13
    Last Post: 05-01-2016, 12:58 AM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.