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Thread: Physical Therapy experiences and Stiff Person Syndrome

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Physical Therapy experiences and Stiff Person Syndrome

    I signed up for PT to help with back pain and also Stiff Person Syndrome muscle spasticity in my ankles and shins.

    Big mistake. After the visit, the spasticity increased for hours, and the following 4 days after each PT homework assignment had increased spasticity. So, I stopped PT.

    During the PT session, he also had wanted to try low current electric stimulation in the muscles. Glad I turned it down, as it didn’t seem appropriate for Stiff Person Syndrome !

    Internet suggests “passive”PT and ultrasound could help Stiff Person Syndrome....Dunno. Not taking a chance at this point.

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    Distinguished Community Member Sunshine's Avatar
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    A fellow Stiff Person Syndrome Warrior is starting PT now. Will be curious about its impact and side effects.

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    Distinguished Community Member Sunshine's Avatar
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    https://www.ncbi.nlm.nih.gov/pubmed/16630369

    Case report on PT and Stiff Person Syndrome

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    My fellow SPS warrior said the PT is making it easier to walk. It does create more stiffening and spasm.

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    Distinguished Community Member Sunshine's Avatar
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    Go to this web page and listen to Dr Newsome talk about PT for Stiff Person Syndrome, in the Management of Stiff Person Syndrome window of this web page

    https://www.hopkinsmedicine.org/neur...ome/index.html

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  11. #6
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    Good pdf of case report. Bring it to your PT!

    http://cdn.neoscriber.org/cdn/dl/102...4-f3d3f1d631ee

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    Research article on PT for Stiff Person Syndrome:

    https://www.hindawi.com/journals/bmri/2019/5613680/#B6

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    Quote Originally Posted by Sunshine View Post
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    My fellow SPS warrior said the PT is making it easier to walk. It does create more stiffening and spasm.
    Glad the PT is helping with SPS. In CP PT is a mixed bag with the stiffening because parts of it loosen muscles and other parts cause tension without the PT meaning to cause tension.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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