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    Stiff Person Syndrome

    BT has opened a sub forum for Stiff Person Syndrome. As you know, I have this as well as MS. It’s very rare, one in a million, and thus hard to find info and patient to patient contact,

    Perhaps this will help remediate that.
    Only registered and activated users can see links., Click Here To Register...

    #2
    Some time ago BrainTalk had a forum for this disorder. It's nice to see that it's being revived.

    Some of the old posts are still available in the archived BrainTalk in case you didn't realize--going from 2008 to 2011, I think.

    Only registered and activated users can see links., Click Here To Register...

    There might even be a way of contacting the posters there to let them know about the forum in case they'd like to check in again. A moderator would know if this can be done--?
    Last edited by agate; 01-06-2018, 06:59 AM.
    SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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      #3
      I plan to post the link on the SPS FB page. But first want to flesh out threads before sending traffic there.

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        #4
        Originally posted by agate View Post
        Some time ago BrainTalk had a forum for this disorder. It's nice to see that it's being revived.

        Some of the old posts are still available in the archived BrainTalk in case you didn't realize--going from 2008 to 2011, I think.

        Only registered and activated users can see links., Click Here To Register...

        There might even be a way of contacting the posters there to let them know about the forum in case they'd like to check in again. A moderator would know if this can be done--?
        I messaged the moderator and he will see if we can unarchive the posts and essentially combine it

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          #5
          Also some of the posters on the archived board re-registered under the same user names on this board. You could send them PMs letting them know about the revived board, maybe?
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

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