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Thread: Stiff Person Syndrome

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Stiff Person Syndrome

    BT has opened a sub forum for Stiff Person Syndrome. As you know, I have this as well as MS. It’s very rare, one in a million, and thus hard to find info and patient to patient contact,

    Perhaps this will help remediate that.
    http://www.braintalkcommunities.org/...erson-Syndrome

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  3. #2
    Distinguished Community Member agate's Avatar
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    Some time ago BrainTalk had a forum for this disorder. It's nice to see that it's being revived.

    Some of the old posts are still available in the archived BrainTalk in case you didn't realize--going from 2008 to 2011, I think.

    http://www.braintalkcommunities.org/...play.php?f=253

    There might even be a way of contacting the posters there to let them know about the forum in case they'd like to check in again. A moderator would know if this can be done--?
    Last edited by agate; 01-06-2018 at 07:59 AM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  5. #3
    Distinguished Community Member Sunshine's Avatar
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    Default

    I plan to post the link on the SPS FB page. But first want to flesh out threads before sending traffic there.

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  7. #4
    Distinguished Community Member Sunshine's Avatar
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    Default

    Quote Originally Posted by agate View Post
    This quote is hidden because you are ignoring this member. Show Quote
    Some time ago BrainTalk had a forum for this disorder. It's nice to see that it's being revived.

    Some of the old posts are still available in the archived BrainTalk in case you didn't realize--going from 2008 to 2011, I think.

    http://www.braintalkcommunities.org/...play.php?f=253

    There might even be a way of contacting the posters there to let them know about the forum in case they'd like to check in again. A moderator would know if this can be done--?
    I messaged the moderator and he will see if we can unarchive the posts and essentially combine it

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  9. #5
    Distinguished Community Member agate's Avatar
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    Default

    Also some of the posters on the archived board re-registered under the same user names on this board. You could send them PMs letting them know about the revived board, maybe?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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