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Thread: OT November Chit Chat

  1. #1
    Distinguished Community Member Pegakafarmgirl's Avatar
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    Default OT November Chit Chat

    Hello,, hows life treating you ?

    We got our crops out, and Joe played chase/man {running wagons to the elevator},, which was always my job,, bitter sweet,, but its all right,, I got to play cook,,lol..

    Weather is acting like late fall,, some snow flurries, and rain,, lots of wind,, normal Iowa weather

    Halloween , we had 10 kids ,, their outfits ,, very inventive,.,

    not much else,., I am doing real good with this med., hope it keeps it up,,

    later then,,
    Last edited by Pegakafarmgirl; 11-01-2017 at 09:36 AM.
    " Don't outsmart your common sense"

    Peg

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  3. #2
    Distinguished Community Member Lazarus's Avatar
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    Great to be feeling stronger!!

    We have not had a hard frost yet so we are still picking eggplant and peppers and flowers!
    Just when I am dreaming of a long winter's nap!

    I know how it feels to get medicine that helps and to feel, even a little, like the self you used to know. What a blessing.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member BBS1951's Avatar
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    Yay Peg! So glad Ocrevus is helping you!

    Today I get my 26th IVIG infusion. It takes 7.5 hours.

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    Distinguished Community Member Howie's Avatar
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    I just got up and having my coffee. It feels chilly, so I turned my heat on to warm it up in here, then back off hopefully until tonight. Have a great day everyone!
    Roswell was a gift.

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  9. #5
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    Peg, wonderful news about the new medicine. I hope it keeps getting better and better.

    Howie, you sleeping in the daytime and staying up to watch TV at night now?
    Virginia

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    Distinguished Community Member Howie's Avatar
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    My sleep pattern is all over the place. If it goes as usual, the night before we get paid, I can't sleep because I want to be at the store at 7am, and tomorrow night will be that way especially since it will be a Friday payday. We'll see.
    Roswell was a gift.

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  13. #7
    Distinguished Community Member agate's Avatar
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    Makes sense to me, Howie. Do you like getting to the store early so you can avoid the crowds?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #8
    Distinguished Community Member BBS1951's Avatar
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    I know I do. To be sure I get the motorized cart!

    The lady is coming to house today to measure me for a wheelchair. On Monday, I go to PT to be evaluated to see if qualified for medicare to cover wheelchair, and if so, what kind, i.e. ultralight or ultra heavy :)
    Last edited by BBS1951; 11-02-2017 at 09:43 AM.

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  17. #9
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    Glad folks are making progress, the good kind! Peg, especially glad to hear that you've found something that works.

    ANN
    There comes a time when silence is betrayal.- MLK

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  19. #10
    Distinguished Community Member agate's Avatar
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    Peg, you've been brave and tried quite a few remedies already. It really is good to know that Ocrevus is tolerable and seems to be helping. Looks as if real progress is being made.

    Yesterday I went to the lab for routine lab work and, even though it took 25 minutes to get checked in there, thanks to a clerk who apparently was brand new on the job, they did get the results posted on MyChart in record time. They were there this AM.

    Looks as if everything was good, and that is always good news.

    The HbA1C was 5.2, which is within the good range of 4.3 to 6.That's almost always where it's been ever since I started watching the blood sugar back in 1985. I'm very pleased about this!

    Twice a year I go for these fasting tests and take my own breakfast in my handbag, to eat while I wait for the van to take me home. It's easier than going to the building's cafeteria. Breakfast comes at lunchtime and then lunch is in mid-afternoon when I'm home. Yesterday's take-along breakfast was a high-fiber bar, a reduced-fat mozzarella cheese stick, a few raisins, and 6 oz. of V8 juice.

    They actually did a vitamin D test. I've been on this high dose of vitamin D3 (5,000 IU/day) for quite a few years now. This time it was 70.2ng/ml. The lab test result states that over 100 would be "potential toxicity." The last time this was checked was 4 years ago, and it was 76.3. The doctor at that time was aiming for 80.

    The vitamin D3 dosage was the same 4 years ago but the blood level has gone down somewhat in those 4 years. Maybe more vitamin D needs to be added--I'll ask when I see the doctor.

    The cholesterol readings and even the potassium were all really good. The potassium can be borderline at times (low) but if I watch the diet very carefully I can get it back up again.

    BBS, good luck with the wheelchair evaluation. I believe that if your doctor prescribes a wheelchair for you, Medicare will cover it? Or does Medicare now want you evaluated by a physical therapist? Guess Medicare still picks up 80% of the bill and the rest is up to your insurance or you yourself?
    Last edited by agate; 11-02-2017 at 08:06 AM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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