Page 16 of 16 FirstFirst ... 6111213141516
Results 151 to 151 of 151

Thread: What Is Next For Jonathan?

  1. #151
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    3,780
    Blog Entries
    1

    Default

    ((((((Donna)))))) ~

    Jon is happy and healthy today. John just left after The Turning, as we now call it. It's such an ordeal for Jon. So many wounds to treat. And we have to be careful that he isn't laying on his catheter or his colostomy bag, when he's on his side. Today, the colostomy clip dug into his thigh!

    His nurse will be here Thursday to change his catheter. John said that he would be here to turn Jon, so that she can inspect his wounds. Jim said that he could do it, and we'd just change his under pad. He needs his entire bed changed, otherwise, he'll go a week with the sheet we put on today. God Bless John!

    John's mom is in the hospital. Her shunt was removed, as the doctors wanted to rule out it as a source of infection. From John's descriptions, it seems to me that Rose has some neurological deficits. I am very worried about her.

    Today, John's daughter turned Sweet 16. She is a volleyball star on the varsity team. I get to play "Grandma!" So, I had fun finding her cute gifts ~ a sterling silver necklace with a heart inscribed with her initial, and a volleyball charm; a sterling silver key chain with "Live Love Volleyball" inscribed on it; an angel visor clip for her car, with a heart, her name inscribed, and on the back it reads: Never drive faster than your guardian angel can fly. And a gift from Jonathan ~ "Jumanji: Welcome to the Jungle" Blu-Ray. Jon loves this movie.

    She is quite excited to start driving, as are John and his wife. So, I combined driving and volleyball. I even enjoyed wrapping her gifts. I found really cool, sweet cards, and a darling gift tote.

    John showed us a video from today, when his daughter arrived at school, her best friend detained her with chatting, so she couldn't see the boy with a bouquet of roses and a banner reading: "I know it's your birthday, but would you give me a present and go to the Homecoming dance with me?" The banner was held by several of the boy's friends. Of course, she was surprised and delighted. And the boy is very handsome and tall. She is a natural beauty and tall. They look great together!

    And ... I went to the same high school, back in the covered wagon days. In those days, a boy would shuffle up to you and say, "Ya wanna go to the dance?" Although that did not happen to me. I never went to a Homecoming or a Prom. I dated a college freshman, who worked 3 jobs, and took care of his family, since his dad was disabled. He was a surfer and drove a Woodie. Then, he went to Vietnam. When he returned, he was damaged with PTSD and guilt.

    So, I love to see these boys going to great lengths to woo their dates. It shows respect and a nod to romance. And these two teens weren't the least bit awkward. They are good friends, and he's an athlete on the soccer team. I loved watching the video, because it gives me faith for the future generation. There is kindness among them.

    John's daughter wants to visit us and to visit Jon. She is just so busy. And she learned that kindness from her parents, aunts/uncles/cousins. They are just a lovely family with hearts of gold.

    Well, Jim called me away from my composition, because Jon's formula was leaking all over the floor. So, I spent about 15 minutes bent over scrubbing the floor.

    When I returned, I somehow erased the entire story of our bee problem. They build their combs in the floor beneath Jim's workshop, where he made Native American flutes. We dealt with it in 2016, and last year, when Jim came home from the hospital, and now they're back. But the lovely bee exterminator we had last year came out today and offered to remove the hive and replace the floor, after moving all of Jim's equipment from the corner, then installing a flash and screen to keep them out.

    He said, "Where I come from, we respect our elderly and help them. I am going to help you." Jim explained that he has cancer, and he said, "I'm so sorry. Don't worry, I will take care of everything."

    So tomorrow is MRI/CT scan day. And Wednesday, the bee guy will return. Thursday is Jon's catheter change and wound care exam. Busy week.

    I send you all of our love, Donna, and prayers for healing and safe travels. I'm so sorry about the tornado, and I pray that power has been restored to all.

    And love and hugs to ALL ~

    Love & Light,



    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

  2. The following 2 users say "thanks"


Page 16 of 16 FirstFirst ... 6111213141516

Similar Threads

  1. Jonathan's Graduation and Prom
    By Nick,Brian,andJon'sMom in forum Child Neurology
    Replies: 3
    Last Post: 09-03-2017, 09:00 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.