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Thread: OT September Chit Chat

  1. #11
    Distinguished Community Member BBS1951's Avatar
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    Infusion was uneventful. 7.5 hours... I met a guy with Stiff Person Syndrome, much worse off than me so Far. His is Much worse than MS.

    Howie, i walk to the bathroom once an hour to pee, but also to prevent DVT, a hazard with IVIG. You just roll the IV pole with you.mthr hard part is how damn low down the toilet is. The SPS makes it hard to squat, so I have to pee like a guy, GEESH! It's a hospital for crying out loud.

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  3. #12
    Distinguished Community Member BBS1951's Avatar
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    Quote Originally Posted by Jeanie Z View Post
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    :) Wow you are all early birds. I slept until 1:30 today. The phone rang when I was sleeping and I let the answering machine get it. A friend up north was calling to tell me his brother died. I was quite surprised as he was young and I thought he was pretty healthy and that the brother who called was sickly. Apparently they both were ill.

    It seems every month another friend dies that is two this week. I am outliving them all. I am going to go to the van in my pajamas and go to the drive thru at Walgreens and get my meds. Then maybe through the drive thru at Wendy's and get a baked potato with broccoli and cheese. Then home an take a nap. Jeanie :)

    PS I enjoy reading all of the activities and what y'all are up to.
    Jeanie, it sure is tough ageing, seems like every week, someone we know or know of dies.

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  5. #13
    Distinguished Community Member agate's Avatar
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    BBS, I may have mentioned that I have a neighbor with stiff person syndrome. She was in a nursing home for some years before she moved here, and so she's probably more independent now than she was then.
    Last edited by agate; 09-03-2017 at 06:27 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #14
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    Thanks Peg for getting us started. As usual you are so busy - all the time busy with things to take care of and do.

    Agate, thanks for reminding me of that song. As I read I was singing along to the tune (in my mind). Long time since I thought of it.

    Howie, guess you got all your first of the month errands taken care of.

    Ann, glad you are home safe and are all cozy.

    Jeannie, I sometime feel that way about loosing so many friends now.

    BBS, glad the infusion went well and just hope that does not change over night.
    Virginia

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  9. #15
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    Hi Virginia. What have you been up to today? I hope you are feeling alright.

    ANN
    There comes a time when silence is betrayal.- MLK

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  11. #16
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    Hi Ann, just my usual bank, two grocery stores, had nails done and went to UPS to send three items back that I didn't like or that did not fit.

    Glad your vacation was nice, but glad you are back home. Last year you sent a picture of you flying a kite, but this year you didn't send us anything. Now we are all upset.
    Virginia

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  13. #17
    Distinguished Community Member Howie's Avatar
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    I'm freezing! They were saying it's 72* at 2pm, but it's only 62*. Sam and I have been all snuggled up under a blanket, taking our afternoon "nap". Not really sleeping...well I didn't anyway.
    "Moving to Montana soon, gonna be a dental floss tycoon."

    Frank Zappa

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  15. #18
    Distinguished Community Member agate's Avatar
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    Freezing? Blanket??

    Howie, have you fast-forwarded somehow? All my windows are wide open for what cool air there is in the morning, and as the day goes on, I'll close them up and probably turn on the AC. It's going to be around 100' today.

    I'm hearing raccoons out there. Their sounds don't sound much like animal sounds. They sound like clattering bits of metal, as if someone took a bicycle chain and started rattling it.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  17. #19
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    Cool and rainy here yesterday while I was out. Cool in the house today, but I have not checked our outside temps today.

    Ann, if you get a chance let me know the weather forecast for that area through Monday. My golfer nephew is playing there through Monday. He played yesterday and is playing today. Last update I had on Facebook from his Mom was that he had just made hole in one and was tied for lead. My brother is there to see him, but his Mom stayed home this week-end. The update was about 2PM.
    Virginia

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  19. #20
    Distinguished Community Member Howie's Avatar
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    A hole in one is rare, even in pro golf. I've had a few at putt-putt!
    "Moving to Montana soon, gonna be a dental floss tycoon."

    Frank Zappa

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