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Thread: Congenital birth defect of C1 vertebrae

  1. #1
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    Default Congenital birth defect of C1 vertebrae

    Hello everyone. It's been a few years since I've popped in but when I do it's for my Wife who has hydrocephalus.

    About a month ago the first 3.5 fingers of my right hand went numb and the tingling went up to my elbow. It woke me up in the night with pain. A few days later it spread to the left hand. I went to the chiropractor which did not help. I made an appointment and my doctor ordered a CT scan of my neck. I received the results this last Friday. I learned that I have a congenital birth defect of the arch on c1. The posterior is missing 2.2 inches and the front never fused together. My physician doesn't know if this is causing my issues yet but I have been referred to a neurosurgeon for an opinion. Does anyone in this group have this? If do does it cause you any problems? I'm sorry for the long post.

    Thank you

  2. #2
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    CM not INCHES

  3. #3
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    I don't know anything about this condition but I would be careful about chiropractic maneuvers on the neck if you have this neck issue going forward.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
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  4. #4

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    I don't know any idea of this but I am aware now of this situation. It's always a good idea to consult with specialist.

  5. #5

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    If by first 3.5 fingers you mean the thumb side there may be issues with your C6-7. If from the pinkie side it could be C5-6. I had an accident in late 1999 that damaged both of those discs. I now have artificial discs at both C5-6 and C6-7. It has totally resolved my pain and numbness issues though I still don't have completely full range of motion. It's much better than before surgery, however. You might want to Google dermatome chart and see if your symptoms match up with the nerves that exit between the lower cervical discs. It's entirely possible it is totally unrelated to your C1 condition. Good luck!
    Last edited by gracie05; 05-05-2017 at 07:10 AM.

  6. #6

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    By the way, when a vertabra fails to fuse together in the lower spine it is usually a type of spina bifida. Partial closure is spina bifida occulta. Spina bifida usually causes paralysis from that point down and hydrocephalus at birth because the gap causes the spinal cord to be pinched off. Occulta creates a weak point that is vulnerable to injury. I don't know about that high in the neck but I definitely wouldn't let a chiropractor near it until I had a full neurological evaluation! Something significantly moving wrong at that level could make everything quit working altogether!! The fact that it is just the arch that didn't close makes it different than spina bifida but it could have spurs or pointy ends that could damage your cord with aggressive adjustments. What you describe really sounds like problems in the lower neck, though. When my C6-7 started acting up a little over 10 years after the accident that hurt my neck, I suddenly, as in almost overnight, couldn't press hard enough on a pen or pencil to write without excruciating pain in my elbow and forearm! My pinkie side had been numb or tingly for years, but it was the awful pain that pushed me to the surgeon. However, I was in Europe at the time where they are about 15 years ahead of the US in using artificial discs so I don't know what they would offer you here if that disc is bad. I do know that people who get artificial discs rather than fusion tend to do a LOT better post-op!
    Last edited by gracie05; 05-05-2017 at 07:16 AM.

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