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Thread: Ocrevus redux

  1. #1
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    Default Ocrevus redux

    I am finally scheduled for infusions. Has anyone started it yet?9
    Be the person your dog thinks you are

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  3. #2
    Distinguished Community Member Howie's Avatar
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    Good luck with it, and keep us informed.
    "Moving to Montana soon, gonna be a dental floss tycoon."

    Frank Zappa

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    Distinguished Community Member BBS1951's Avatar
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    Peg started hers. I wish you luck and success. Please let us know how you're doing

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    Distinguished Community Member agate's Avatar
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    If those on Ocrevus want to share this information, I'd be interested in knowing how the treatment made you feel. Did you notice any changes--odd sensations, new symptoms, old symptoms that vanished or got somewhat better?
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  9. #5
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    Quote Originally Posted by agate View Post
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    If those on Ocrevus want to share this information, I'd be interested in knowing how the treatment made you feel. Did you notice any changes--odd sensations, new symptoms, old symptoms that vanished or got somewhat better?

    I am with Agate on this. If you want to share any information re infusion I would be interested in knowing.
    Virginia

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  11. #6
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    Pretty confident that it will stop progression. I would be so happy if I regain some function, perhaps newest sx. I'll keep you guys posted. I've been on a consistent slide for a while.
    Be the person your dog thinks you are

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  13. #7
    Distinguished Community Member BBS1951's Avatar
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    Am sorry to hear you've been sliding. I really hope Ocrevus will benefit you. Does your doc think you might regain what you've lost in your latest symptom?

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  15. #8
    Distinguished Community Member Pegakafarmgirl's Avatar
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    good luck ssusan,, my firs t infusion was July 5th >>half a dose. I go in the 19th for the other half,,

    as far as I can tell,, nothing has changed, maybe after this infusion, I can tell if there is a change,,we'll see

    5 hours I was in,, nurses checked blood pressure every 15 minutes,,
    " Don't outsmart your common sense"

    Peg

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  17. #9
    Distinguished Community Member Howie's Avatar
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    Peg, did you take a book, or at least have TV to watch? 5 hours is a long time, but I guess that's the way it has to be done. Good luck with the second one.
    "Moving to Montana soon, gonna be a dental floss tycoon."

    Frank Zappa

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  19. #10
    Distinguished Community Member agate's Avatar
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    Hope the Ocrevus people don't mind all of the questions but did you have to lie in bed the whole time? Or could you sit up? Was there anyone else in the room to talk to?

    Checking your BP every 15 minutes--that sounds as if they were being pretty careful.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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