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Thread: Keep on Moving Club: May 2017

  1. #11
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    Yes, Linda I had not thought of it, but that is correct I think most of us do feel it diminishes the serious nature of the disease.

    Glad you explained it in a way I can understand.
    Virginia

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  3. #12
    Distinguished Community Member BBS1951's Avatar
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    Laz, that makes sense.

    I put a tarp on the ground and lay down on my side this morning and weeded for a little bit. That was satisfying. It seems like being outside really settles the mind.

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  5. #13
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    Laz, that makes sense.

    I put a tarp on the ground and lay down on my side this morning and weeded for a little bit. That was satisfying. It seems like being outside really settles the mind.
    Good for you! I am trying hard but not doing too much. I see my neurologist today. Hope to set up infusions for June. I am running out of steam.

    I have been crawling around inside the house with a bucket and cloths and I am washing these farmhouse floors. Even that is making me tired!
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  7. #14
    Distinguished Community Member BBS1951's Avatar
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    Man, you do more than most healthy people!

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  9. #15
    Distinguished Community Member BBS1951's Avatar
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    I went for a brief swim yesterday. No spasms after. Maybe the higher Baclofen dose is helping that.

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  11. #16
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    I went for a brief swim yesterday. No spasms after. Maybe the higher Baclofen dose is helping that.
    That would be great!


    . I often jump too quickly to decide if something is working or not. I suffered for a long time with what I insisted were deforming toes. When I finally looked at them during an episode I discovered that my toes were not curling up literally. I started taking baclofen which I had decided was a useless drug. Boy, was I wrong.

    I take baclofen more regularly now and it helps although it does not eliminate the tendon tension it fixes it most of the time.
    Last edited by Lazarus; 05-11-2017 at 02:48 AM.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  13. #17
    Distinguished Community Member BBS1951's Avatar
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    Yah. I would be dead without Baclofen. The trick is finding the best dose that helps but doesn't create bad side effects. That's what am in midst of right now.

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  15. #18
    Distinguished Community Member BBS1951's Avatar
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    I swept the porch, and a few hurricane shutters this morning after grocery shopping just after sunrise. Hoping a short swim will be okay and then get fish, produce and rest for the rest of the day.

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  17. #19
    Distinguished Community Member Pegakafarmgirl's Avatar
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    I am so glad to see everyone is working on the excercises,, I am trying hard,, some days the battle ends up in a tie, some days MS wins, but I just get more determined to win,, I still ride my horse, which its getting some what easier, once, I get in the saddle,, my horse is amazing,, he knows when its me riding him, and adjusts to me,,can't ask for anymore then that..

    keep on/keeping on
    " Don't outsmart your common sense"

    Peg

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  19. #20
    Distinguished Community Member BBS1951's Avatar
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    That's amazing Peg!

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