I got another IVIG yesterday. It was a six hour infusion and no side effects.
They had the Fox News on their TV sets. I couldn't take hearing all that anger. No one was watching and the nurse was kind enough to turn the volume down so low, it was inaudible. Last time it was 24/7 Hurricane Matthew coverage which, although a bit stressful, was welcome to watch as I knew that I would evacuate 24 hours later likely.
I realize that these infusions have greatly helped the MS as well as the chronic lung inflammation.
Still in an MS flare, but a few days ago I could feel the coldness of the floor again. I am still walking at least a few minutes.
I worked two hours this week will try 3 hours for three days next week. Will try to drive 45 minutes to beach this weekend, each way. Not surfing yet. Not until I think I can stand up from sitting on the ground without triggering spasms. The ocean will be too rough to be able to have a buddy control my board in the shallows and simultaneously get me to my feet.
My friends have been awesome. But I don't want to wear them out too much. Family has been awesome.
They had the Fox News on their TV sets. I couldn't take hearing all that anger. No one was watching and the nurse was kind enough to turn the volume down so low, it was inaudible. Last time it was 24/7 Hurricane Matthew coverage which, although a bit stressful, was welcome to watch as I knew that I would evacuate 24 hours later likely.
I realize that these infusions have greatly helped the MS as well as the chronic lung inflammation.
Still in an MS flare, but a few days ago I could feel the coldness of the floor again. I am still walking at least a few minutes.
I worked two hours this week will try 3 hours for three days next week. Will try to drive 45 minutes to beach this weekend, each way. Not surfing yet. Not until I think I can stand up from sitting on the ground without triggering spasms. The ocean will be too rough to be able to have a buddy control my board in the shallows and simultaneously get me to my feet.
My friends have been awesome. But I don't want to wear them out too much. Family has been awesome.
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