But I was saving that brain cell......
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Originally posted by BBS1951 View PostNot only that, but the head nurse caught my eye and said hello to me specifically. He is trying. It won't be a problem as long as he stays the head nurse that makes the assignments.
Am glad I spoke up. It helps that I had braintalk people rooting for me:)
Now if we could just get Sally back in here, we'd be really a class act around here.
SALLY, hi there if you're reading!SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.
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Had 25G IVIG infusion yesterday, my third at that amount.
Nurse increased rate from 30 to 35 to cut 45 minutes off 7 hour infusion, at mutual agreement.
At 2.5 hours, developed massive shin and feet spasms. Slowed rate down and took big dose Tizanidine. Was horrible. Neuro gave advice. Said it could be due to rate or coincidence.
.next time try slower rate or will premedicate.
Had to call DH at work to arrange to drive me home and have my car delivered to house. GEESH
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BBS, I am so sorry you are having such a hard time. I so hope this will not happen again.
I talked yesterday with the NP I saw at my Neurologist office about Ocrevus and IVIg. He said "no" to me on both. I can kind of understand. The Ocrevus causes the B cells to go down, and that can cause one to be more susceptible to infections. He said since they go down with age anyway, he would hesitate to recommend this drug at my age and then maybe me have problems with infections.
On the IVIg, I can't remember exactly what he said, but he just shook his head "no". I do remember that.
I hope you are feeling better BBS!Virginia
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Originally posted by BBS1951 View PostHad 25G IVIG infusion yesterday, my third at that amount.
Nurse increased rate from 30 to 35 to cut 45 minutes off 7 hour infusion, at mutual agreement.
At 2.5 hours, developed massive shin and feet spasms. Slowed rate down and took big dose Tizanidine. Was horrible. Neuro gave advice. Said it could be due to rate or coincidence.
.next time try slower rate or will premedicate.
Had to call DH at work to arrange to drive me home and have my car delivered to house. GEESH
I hope you are recovering and will be better and better.Linda~~~~
Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"..
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Originally posted by Virginia View PostBBS, I am so sorry you are having such a hard time. I so hope this will not happen again.
I talked yesterday with the NP I saw at my Neurologist office about Ocrevus and IVIg. He said "no" to me on both. I can kind of understand. The Ocrevus causes the B cells to go down, and that can cause one to be more susceptible to infections. He said since they go down with age anyway, he would hesitate to recommend this drug at my age and then maybe me have problems with infections.
On the IVIg, I can't remember exactly what he said, but he just shook his head "no". I do remember that.
I hope you are feeling better BBS!
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