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Thread: Infusion IVIG

  1. #21
    Distinguished Community Member Frog42's Avatar
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    Quote Originally Posted by nuthatch View Post
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    Sometimes it seems like medical science really doesn't know all that much really!
    But they act as though they do so we'll be sure to act as though we trust them.


    Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

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  3. #22
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    Oh no Laz! You've been my hero, finding treatments that work for you and living a full life. ... I hope things start to improve for you.

    Thanks for the feedback. I know some take the whole treatment sub cutaneously. They do it in the privacy of their homes they stick needles in their own stomach, ew!
    INstill am impressed with my medical situation.......remember, I spent the whole season farming and going to market...assuming more and more of John's part as the summer went on. Then with his total collapse I have been handling all aspects of the greenhouses, running back and forth when John was in hospital and gathering information and making decisions about what to advise him....
    So, it is amazing that I functioned so well! I attribute this to the rituxan. When you have tough times, don't you think the IVig helps stabilize things preventing a total collapse?
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  5. #23
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    Linda, you really do so much and so well. I am so glad to hear it.

    BBS, this is just a minor bump in the road for you - at least I hope it doesn't happen again.
    Virginia

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  7. #24
    Distinguished Community Member BBS1951's Avatar
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    The main help I can see from IVIG is vast improvement in fatigue and I can feel the floor under the feet better. And, it has improved my chronic cough about 75%

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  9. #25
    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by BBS1951 View Post
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    The main help I can see from IVIG is vast improvement in fatigue and I can feel the floor under the feet better. And, it has improved my chronic cough about 75%
    Yup! THe fatigue thing is the biggest benefit I got but also my legs were stronger. You know, the infusion wears off so there is a feeling of loss toward the time right before you get the next infusion. Sort of like needing to fill the gas tank.

    But neither the rituxan or the IVIg cure anything. The MS is still there and active. Still, our meds allow us to be physically active and get as strong as possible. And that helps a lot every which way.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  11. #26
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    Just to help with the fatigue would be a major factor in coping and dealing. Linda and BBS, you two are doing great.
    Virginia

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  13. #27
    Distinguished Community Member BBS1951's Avatar
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    ......Me too :)

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  15. #28
    Distinguished Community Member BBS1951's Avatar
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    Had ninth infusion today, uneventful.

    Last time the needle bent out of the vein so it infused into arm tissue and made it swollen. Not a medical problem, but uncomfortable. Learned lesson to check it, if arm aches during the infusion.

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  17. #29
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    BBS, glad all went well this time. Hope you get a real lift out of this one.
    Virginia

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  19. #30
    Distinguished Community Member BBS1951's Avatar
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    Fatigue is still gone. Legs are no better.

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