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Thread: Infusion IVIG

  1. #11
    Distinguished Community Member agate's Avatar
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    BBS, it's too bad you have this swelling problem but it sounds as if you know what you're doing in deciding to spare yourself a trip to the ER.

    Needles in the stomach aren't bad at all--or at least Copaxone needles weren't so bad. I had doubts about whether I could bring myself to use the recommended stomach sites but was amazed to find that they were the easiest of all--easy to reach and less pain by far than any of the other sites.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  3. #12
    Distinguished Community Member Howie's Avatar
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    But wouldn't it be nice if there we NO needles for any med for MS. Seems there was a effort to create such meds, but being as the MS meds are STILL only injectable, I guess it didn't work making them in pill form.
    Roswell was a gift.

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  5. #13
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    Howie, there are pills. Our Cat is on one, Tecfedera (?sp).

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    There comes a time when silence is betrayal.- MLK

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  7. #14
    Distinguished Community Member Howie's Avatar
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    What injectable does that represent, or is that a totally new approach?
    Roswell was a gift.

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  9. #15
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    It's was a new drug.

    Cat's thread about it is here:
    http://www.braintalkcommunities.org/...ight=Tecfidera

    The company is here: http://www.tecfidera.com

    There are also these two oral meds for MS now:
    Aubagio (teriflunomide)
    Gilenya (fingolimod)

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    Last edited by stillstANNding; 11-17-2016 at 07:54 PM. Reason: Added info
    There comes a time when silence is betrayal.- MLK

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  11. #16
    Distinguished Community Member nuthatch's Avatar
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    The needle mishap sounds scary! Years ago, my son went to donate blood at a blood drive at his workplace. After the nurse got him all hooked up, she went to tend to another donor. My son started feeling weird and summoned the nurse just as his vision narrowed. She saw he was about to loose consciousness and very quickly pulled the needle out. She had apparently pierced the vein and gone right out the other side, effectively blocking blood flow, which is why he was loosing consciousness. Unfortunately, that experience turned him off to donating blood.

    I know that you had a problem with scaroidosis a few years back. Does the IVIG affect it?

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  13. #17
    Distinguished Community Member BBS1951's Avatar
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    Good memory! I don't know if it impacts sarcoidosis. IVIG has anti inflammatory properties, sarcoidosis involves inflammation, so maybe? Mayos opinion was that the sarcoidosis was caused by the Avonex, which left me hopeful it would not come back again.

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  15. #18
    Distinguished Community Member SalpalSally's Avatar
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    DD is on Abagio and doing well so far!
    Love, Sally


    "The best way out is always through". Robert Frost







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  17. #19
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    Howie, where have you been? These oral drugs have been around for awhile now.

    Agate, you are right the injections given in the stomach are the ones that hurt me the least also. There are no oral drugs that I can take. Partly because I have been on interferons for so long and anyway I have aged out of the time they will give some of the newer drugs.
    Virginia

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  19. #20
    Distinguished Community Member nuthatch's Avatar
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    I hope that the IVIG is good for the sarcoidosis as well as your MS and the other problem you suffer from. It's not fair, just too much on your plate!
    I remember you posting about the possible sarcoidosis/Avonex connection years ago. I also had injected some of the recalled Avonex at that time, but had no obvious problems as a result. I had never heard of sarcoidosis before that time.

    Just recently, I reconnected with an old high school friend. He told me his 33 year old daughter had to have a heart transplant due to sarcoidosis, so I've been reading up on it. Seems it's yet another one of those immune reactions that not much is known about. Sometimes it seems like medical science really doesn't know all that much really!

    Wishing you well, BBS.
    Joan

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