NOTICE This is a global thread which means that after you reply you will most likely be in the Forum Feedback forum and not the forum you replied from.
Page 5 of 5 FirstFirst 12345
Results 41 to 42 of 42

Thread: Possible down time for BT within 2 days

  1. #41
    Distinguished Community Member Earth Mother 2 Angels's Avatar
    Join Date
    Oct 2006
    Posts
    2,953
    Blog Entries
    1

    Default

    ((((((Alex)))))) ~

    I'm so very sorry to hear about your illness. I have missed you and wondered how you and your partner are, looking for posts from you. You are in my prayers.

    There has been activity on some of our forums since you last posted in June, although not in Chronic Pain. The Spinal Disorders forum has had some returning members visit a few times, including Mark N. Mark indicated that he stopped posting, because the forum was inactive.

    The forums became inactive, because people left for whatever reasons. Then, for whatever reasons, when they return, they are astonished that the forums are at a stand still. We can't exactly say, "Hey, I left, but why didn't everybody else stay?"

    Some members left and never returned. Some members left and drop by every blue moon. It's difficult to attract new members, when they see no activity in the forums of their choice/need.

    I try to welcome every new member, and thankfully others have joined the Welcome Wagon, but there aren't enough of us to garner the trust and meet the needs of the new members. I can't really help a person with a CSF leak, or a shunt, or a spinal disorder, or a chronic headache, or any of the other neurological areas, with which I'm not familiar/have no experience. And the members, who could respond and be helpful, are no longer here.

    I'm a grieving parent, and I fought to keep the Coping with the Loss of a Child forum, even though it has no activity. I wanted it to be there, in case a grieving parent needed support. Every day, I see "1 Viewing" the forum, but that person never registers and posts. I even wrote a post to "1 Viewing" to let these guests know that I may be only one person, but I understand their grief journey and am here to share it with them. And where there are two of us sharing, more will feel comfortable to join us.

    We also have new members, who only post one time, get all of the information and support they seem to want or need and then never return to provide an update or say "thank you."

    We recently had a new member post, who thanked us for our help and support and then indicated that she'd found a Facebook group for her specific need and recommended it to others, who are in her situation.

    BrainTalk membership began declining, when Facebook was implemented. Evidently, that is where many of our Child Neurology members hang out now. I strongly suspect that is the case for many of our other forums. We can't really compete with Facebook. Our forums are old school now.

    I hope that you won't let the lack of activity deter you from posting, Alex. I'm here for the duration, and I care about you. I'll always respond to your posts.

    Blessings upon you ~

    Love & Light,

    Rose
    Mom to Jon, 47, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  2. The following 6 users say "thanks"


  3. #42
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,375
    Blog Entries
    12

    Default

    alex44, it's very unfortunate that so many people who looked to this place as a source of companionship and support are being disappointed nowadays.

    I'm sorry that you are among them and very sorry about your illness.

    I can only echo what Rose said. Any number of people have come along with "Where is everybody?" posts in recent years, but as she indicated, if nobody is here, nobody will be here.

    If a few people committed themselves to helping to make this place more active, it just might work.
    Last edited by agate; 09-14-2016 at 01:51 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  4. The following 3 users say "thanks"


Page 5 of 5 FirstFirst 12345

Similar Threads

  1. Replies: 0
    Last Post: 08-22-2014, 10:50 AM
  2. Replies: 3
    Last Post: 03-18-2013, 03:57 PM
  3. Replies: 3
    Last Post: 03-18-2012, 04:41 PM
  4. Replies: 17
    Last Post: 09-26-2011, 02:01 AM
  5. Did you ever have one of those days........
    By JanM in forum Comic Relief
    Replies: 2
    Last Post: 09-10-2011, 01:24 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.