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Thread: Just thought I'd have a look

  1. #1
    Community Member Prot's Avatar
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    Default Just thought I'd have a look

    Have not been on here much since my diagnosis was changed from schizoaffective to personality disorder, and the forum for PDs was discontinued.
    I virtually stopped posting around 2009 after being attacked on the autism forum for posting articles and being subjected to a lot of nastiness.
    I remember when BT was a thriving community in the early noughties. It now seems virtually dead which is a shame. I think it lost more and more members each time the software was upgraded.
    It was a shame that people chose to attack me for posting articles as it was done with the most benign of intentions. I was merely trying to help in the way I was best equipped to do so.
    It was not all bad here though especially in the early days. It's a shame those days went to be replaced with a much more unpleasant atmosphere.
    Last edited by Prot; 06-14-2016 at 08:46 AM.
    Yet inside there is this perpetual nagging doubt;
    the feeling we are possessed by a 'subtle lack of togetherness''.

  2. The following user says "thanks"


  3. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Prot)))))) ~

    BACK!

    It's good that you stopped by, and I'm sorry that the PD forum was discontinued. Mike Weins had to hone down the forums, and he chose the most inactive forums to drop.

    Through the years, many members have returned and posted as you have ~ that the forums were once thriving, and now participation is minimal and waning. That's what happens, when people leave and come back years later.

    "Where did everybody go?" is often posited. Well, they went wherever you went, or they joined other forums, or they started posting on Facebook, or they lost interest in posting on public forums, or ...

    Forums are like gardens. Without watering and nutrition, they wilt and perish.

    I'm sorry that you had negative experiences and were treated poorly. I saw this happen on other forums with other members, and I think that it was the product of the very thing we're now missing ~ the thriving population of BT members. It seems that the more active a forum is, and the more outspoken its members are, the more likely a kerfuffle might ensue.

    And sometimes, people forget that every BT member is coping with a neurological disorder, condition, issue, or caring for someone who is. We're all under stress constantly, and misunderstandings can occur, when we're tired and frustrated.

    There are many lovely, wonderful, friendly, caring people still posting here at BT. We welcome you and invite you to share with us.

    Love & Light,

    Rose
    Mom to Jon, 47, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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  5. #3
    Distinguished Community Member agate's Avatar
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    Default

    Forums can be discouraging in many ways. I'm sorry you've had bad experiences.

    What Rose said says everything I could have said and more.

    Some people have gone on to Twitter or Facebook or PINterest or whatever--new worlds to conquer. But some of us have stayed around here because we've found that those other types of communication don't work as well for us.

    It's very difficult to carry on any real discussion on Facebook, for instance.

    This BrainTalk board has been around for so long that I have the impression people here know what they're doing even though some are different people nowadays. They inherited a carefully tweaked system in spite of some of the downtimes we had.

    There's always room for improvement. Maybe you'll decide to give this place another chance, maybe find some other forums you'll find congenial, and help to improve the scene here.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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